OUCH(UK) Organisation for the Understanding of Cluster Headache

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Posted: November 12, 2021

We're delighted to announce the 2021 OUCH (UK) Virtual Conference. It will take place on Zoom on Sunday 5th December 2021, 12pm - 4.30pm.

This is a free event for members with a £5 fee for non-members.

Find out more and book your place now!

 

Posted: November 3, 2021

The latest edition of our magazine CHit CHat has been published! Click the buttons below for the current and back issues.

Latest CHit CHat

Read Back Issues

Posted: November 1, 2021

As part of this ongoing study, the next phase (our lab-based study) has now opened for recruitment.  We are currently looking for volunteers  (UK-only) aged 18-65  with chronic pain  conditions who would be willing to travel to the University of Warwick Campus (based in Coventry) to take part.

This lab-based study aims to understand the roles that mental defeat and mental victory have in underpinning different experiences of chronic pain.  If you agree to take part, you will be invited to attend a test session with one of the researchers at the University of Warwick Sleep and Pain Laboratory located at the main Central Campus (Coventry). 

The test session typically takes no longer than 2.5 hours. As a thank you for your...

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Posted: October 22, 2021

We are pleased to announce that fundraisers can now create their own fundraising page and collect sponorship donations on our website. With Virgin Money Giving closing down at the end of November 2021 we needed a way to faciliate our wonderful supporters in their fundraising events. Head over to our new section to learn more and set up your own page!

Posted: September 2, 2021

Cumbria Headache Forum - Cluster Headache - 7th October

We would like to invite patients as well as medical professionals to join us for the next Headache Forum which is dedicated to management of cluster headache. It will provide insight into pathophysiology of the condition, pharmacological management and neuromodulation.

Programme:

  • 1:30pm Warm welcome (Chair) - Dr Jitka Vanderpol
  • 1:35pm Cluster Headache - Dr Manjit Matharu
  • 2.15pm Cluster Headache Management in Community Headache Clinic - Siobhan Jones
  • 2.45pm Injectable Treatments...
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Posted: August 19, 2021

You may like to contribute to this recent Department of Work and Pensions green paper consultation and survey. It "aims to explore how the benefits system can better meet the needs of disabled people and people with health conditions now and in the future... [and] is an important step towards making changes that will improve our services, increase opportunities for employment and help more people to live independently. Our approach must be informed by different views and opinions, particularly those of disabled people and people with health conditions."

...

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Posted: August 18, 2021

We now offer another super easy way to donate to OUCH (UK) with our latest text giving service*.  Here's how to do it:

To donate £1, text OUCH to 70201
To donate £3, text OUCH to 70331
To donate £5, text OUCH to 70970
To donate £10, text OUCH to 70191

* Fundraising, payments and donations will be processed and administered by the National Funding Scheme, operating as DONATE, a charity registered in England and Wales (1149800) and Scotland (SC045106). In addition to any text donation, you will incur your standard network message charge (based on your...

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Posted: May 21, 2021

Here's a new way to support your charity - we've joined a lottery!

  • Tickets only cost £1 per week
  • 50% of all tickets sold from our page go to us
  • Support us and you could win prizes of up to £25,000!

Buy tickets through the OUCH (UK) page to help our cause.

Play for a chance to win cash prizes and OUCH (UK) receives 50% of every ticket sold from our page!

Being part of One Lottery means that with your support we can generate regular sustainable funding. Buying a ticket through One Lottery is one way you can help us to continue to grow and provide our services. So whether you...

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Posted: March 9, 2021

Update 22/03/21:  A video recording of this event is now available on the OUCH (UK) YouTube channel 

                                          * * * * * * * * *

Members are invited to join an OUCH (UK) Question & Answer session with CH experts:

  • Prof Peter Goadsby
  • Dr Nicholas Silver
  • Dr Fayyez Ahmed
  • Dr Diane Wei

This will take place on Cluster Headache Awareness Day, Sunday, 21st March, 2021.

This is a free zoom event where members can put their questions to the CH specialists live.  Please register...

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Posted: March 5, 2021

OUCH (UK) is very pleased and proud to announce that their chairman and patron, Professor Peter  Goadsby, is one of four eminent neuroscience researchers who have jointly been awarded the prestigious Lundbeck Foundation annual Brain Prize for their work in the field of neuroscience, with particular regard to the mechanism of migraine, which has led to the development of innovative new treatment for this disabling condition.  The Professor's co-recipients are Professor Dr Lars Edvinson, Professor Michael Moskowitz, and Professor Jes Olesen.

Professor Goadsby is a world authority on the even rarer condition cluster headache and his commitment to reducing the pain of all those who suffer a severe headache condition is a lifelong...

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Posted: March 2, 2021

More volunteers are invited to participate in the Warwick Study of Mental Defeat in Chronic Pain, based at the University of Warwick.  The study is funded by the Medical Research Council (MRC) and is investigating how mental defeat can influence pain sensation, sleep patterns, social activity, physical activity and general health and wellbeing in individuals who have chronic pain.  The researchers are currently looking for volunteers with chronic pain to complete a short online questionnaire.  The questionnaire has three completion time points and participants will receive a £5 Amazon voucher for each time point that they complete.  To find out more, please click the button below.

 

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Posted: January 26, 2021

 

As some of you may know, this month is the 1st Anniversary of the OUCH (UK) YouTube Channel.

To mark this special occasion and for the first time in the history of OUCH (UK), we will be doing a live stream on the channel on Friday 29th Jan 2021 @ 11.00am

We are going to have some very special guests, including the premiere of the pre-recorded podcast with Professor Peter Goadsby who talks about how Covid is affecting Cluster Headaches Sufferers.

Below is a schedule and a link to the channel, so make sure you are subscribed and click the bell...

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Registered Charity No. 1091919 | Registered in England Company No. 04339368