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OUCH(UK) Organisation for the Understanding of Cluster Headache

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News

    Vicky Quarshie - Online Condolence Book
    Posted: May 5, 2020

    We are terribly saddened to share the news that Vicky Quarshie, Headache Specialist Nurse at Hull Royal Infirmary, passed away on April 23rd 2020, surrounded by her loving family.

    Vicky was a member of the BASH council, a founder of the UK Headache Specialist Nurses Group and a Trustee of Park Street Performing Arts Centre where she helped many young people to gain confidence and become performers. She was a great champion of OUCH and was chosen for our Les Charlton Award last year. I had the great pleasure to present her with the award in November during a show she arranged at Park Street to raise funds for OUCH.

    Even while she was ill, Vicky was planning what she was going to do next for us. She was such a kind and...

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    New Member Benefit - Shop Discount
    Posted: April 23, 2020

    We have just added a new benefit for members of OUCH (UK).  There is now a 10% discount on purchases from our online shop.  Remember to log in when you want to make a purchase, then add items to your basket, go to the checkout and your 10% discount will be applied automatically. If you aren't a member you may join here. Thank you for all your support!

    CH Podcast
    Posted: February 20, 2020

    The National Migraine Centre invited OUCH(UK)  to take part in a Podcast on cluster headache.  This is one of a series of podcasts done by NMC covering several different types of headache condition.  The podcast starts with discussion on the particular condition - CH in our case - between health professionals and Charlotte Burr of NMC. 

    Then member Val Hobbs is asked about what it is like to experience CH and how the condition can affect everyday life.  You can listen below or go to the NMC website to also hear more podcasts. For the CH one,  scroll through the list of podcasts and CH is in No. 3 of Series 2 .  It might be useful to...

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    OUCH (UK) Summer Conference Liverpool 2020
    Posted: February 3, 2020

    Saturday 11th July, 2020 at the Liverpool Medical Institution

    DUE TO COVID-19 AND THE LATEST GOVERNMENT ADVICE, WE ARE VERY SORRY THAT WE HAVE HAD TO CANCEL THIS EVENT. WE WILL BE GETTING IN TOUCH WITH ALL THOSE WHO HAVE BOOKED AND WILL BE PROCESSING REFUNDS SOON.

    The Trustees of OUCH (UK) are delighted to announce that we are returning to Liverpool for our 2020 summer conference. This will take place on Saturday 11th July at the Liverpool Medical Institution, 114 Mount Pleasant, Liverpool, L3 5SR.

    CONFIRMED SPEAKERS FOR THE EVENT:

    • Professor Peter Goadsby, Professor of Neurology, King's College Hospital, London, patron and chair of OUCH (UK)
    • Dr Anish Bahra,...
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    OUCH Launches YouTube Channel
    Posted: January 6, 2020

    As part of OUCH UK continuing support, we are pleased to announce the Official OUCH UK YouTube channel.

    This channel will be available 24/7 with videos on various subjects across the board of Cluster Headaches.

    We all appreciate the support you give to this community, and moving forward, we hope this is another avenue that you will support.

    Can you please all click on the link below, subscribe to the channel and turn on notifications, and you will be informed every time a new video is uploaded.

    ...

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    Winner Announced for Mike Pollock Award 2019
    Posted: December 9, 2019

    We're very happy to announce that the winner of this year's Mike Pollock award is Toryn Ahmet Tucker. A most deserving winner, well done everyone!

    This young man has really got behind the cause. He's not only a fantastic support to his mum, Clare, who is a CH sufferer but he has also produced a brilliant YouTube video which has been shared throughout the Facebook community and beyond, raising a massive amount of awareness for the condition. If you haven't yet seen it, here's the link:

    https://www.youtube.com/watch?v=U7JfqML1pS4

    Many congratulations to you, Toryn and thank you. Mike would be delighted for you to receive this award in his name.

    Summer CHit CHat Now Online
    Posted: June 19, 2019

    The latest edition of our magazine CHit CHat has been published! Click the buttons below for the current and back issues.

    Latest CHit CHat

    Read Back Issues

    Volunteers needed for new study
    Posted: May 29, 2019

    Please note:  No further volunteers are required for this study, owing to the high number of responses received.  Thanks to all who got in touch.  5/6/19

    This is a new study looking at first-hand experiences of people living with either chronic or episodic cluster headache in the UK.  Its aim is to get a better understanding of the views of those living with the condition to find out how care and support might be improved in the future.

    It will involve a short telephone interview of approximately one hour. To take part, you must be aged between 18 and 65 years old, resident in the UK and be living with either chronic or episodic cluster headache. The study is being conducted by a researcher at the University of...

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    OUCH (UK) Summer Conference London 2019
    Posted: May 13, 2019

    Sunday 30th June, 2019 - Shepherds Hall, St Thomas' Hospital Campus, London, SE1 7EH

    OUCH(UK) are pleased to be able to return to London to present a packed event specifically for cluster headache sufferers and supporters.

    As usual, the event will be a mixture of talks by Europe's best Neurologists, information sessions and an opportunity to meet and talk with other cluster headache sufferers to share experiences and make and meet new friends.

    Our medical speakers will take you on a journey through cluster headache and other primary headache disorders and tell you about the current treatments available, as well as what studies and trials are on-going and what the...

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    NEW! OUCH(UK) Shop Now Live
    Posted: October 16, 2018

    Look out for the OUCH(UK) online shop selling products to promote awareness of cluster headache. All sales help the charity to support sufferers.

    Just click Shop at the top of the OUCH(UK) website to find these eye-catching items and more:

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    Mike Pollock Award
    Posted: August 17, 2018

    Mike PollockIn 2017 we created a new award to honour our late chairman, Mike Pollock. We wanted to do something special in Mike's name and so now, each year, the award will go to a CH hero in the UK - someone who has shown outstanding and compassionate support to cluster headache sufferers.

    There was never any limit to the help Mike offered to sufferers; he always went the extra mile, never ceasing to have the well-being of sufferers in mind - so we thought he would approve of the nature of this award.

    The first recipient of the new award was Darren Hamilton,...

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    Shortage of Imigran Injections
    Posted: August 16, 2018

    We have recently been informed that there is a production problem with the Imigran injections [subcutaneous sumatriiptan] made by GSK and that they will not be back in full production until January 2019. 

    PLEASE NOTE: SUN PHARMA make the generic form of the injections under the name Sun Pharma - subcutaneous sumatriptan injections.  We are informed by the relevant section of Department of Health that Sun Pharma have plentiful supplies to take up the shortfall on the GSK injections.

    As long as your prescription has the words 'subcutaneous sumatriptan' on it, your pharmacist can supply either GSK or Sun injections.

    August 2018

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