Sunday 30th June, 2019 - Shepherds Hall, St Thomas' Hospital Campus, London, SE1 7EH

OUCH(UK) are pleased to be able to return to London to present a packed event specifically for cluster headache sufferers and supporters.

As usual, the event will be a mixture of talks by Europe's best Neurologists, information sessions and an opportunity to meet and talk with other cluster headache sufferers to share experiences and make and meet new friends.

Our medical speakers will take you on a journey through cluster headache and other primary headache disorders and tell you about the current treatments available, as well as what studies and trials are on-going and what the...

In 2017 we created a new award to honour our late chairman, Mike Pollock. We wanted to do something special in Mike's name and so now, each year, the award will go to a CH hero in the UK - someone who has shown outstanding and compassionate support to cluster headache sufferers.

There was never any limit to the help Mike offered to sufferers; he always went the extra mile, never ceasing to have the well-being of sufferers in mind - so we thought he would approve of the nature of this award.

The first recipient of the new award was Darren Hamilton,...

Yet another first for OUCH (UK), we were invited to attend the first ever Global Patient Advocacy Summit at the 18th Congress of the International Headache Society in Vancouver and Trustee Scott Bruce is representing OUCH along with representatives of 48 other patient organisations from all over the world.  The IHS is an organisation of headache neurologists and health professionals and they produce the internationally recognised headache guide for health professionals.  This is the first time that patient advocate groups have been invited to attend the IHS congress, and represents recognition of the valuable part that the various groups play in supporting patients in finding diagnosis and treatment.

You can read the press...

 
Cluster Headache Imaging Study. Brain Activation during Cluster Headache - BANG-CH
 
OUCH (UK) is delighted to continue to support the study that is being undertaken at Kings College Hospital in London and we are inviting you to take part. If you really want to do something to help your fellow sufferers, then here is an opportunity for you to do just that.
 
These are the details from Kings College Hospital.
 
If you know other sufferers who qualify under the criteria given above,...

This may be the first time that not just a TAC sufferer can do something positive to make the DWP work benefit system better, but their families and friends also. It is a HUGE opportunity for every member and their families to do something really positive and we strongly urge you to take part in this consultation.

OUCH has representation, through Headache UK, in the All Party Parliamentary Group on Headache Disorders. At a recent meeting in the Commons, our newly appointed representative, trustee Elizabeth Kelly, addressed the meeting on her experiences as a disabled person with the DWP and other government departments. It was a powerful and well-received address. Elizabeth was approached by the DWP representative at the meeting...