Our next conference will take place in Newcastle at the Royal Victoria Infirmary on Sunday, 8th June, 2025. Full details and online booking to follow.
News
Posted: March 26, 2024
OUCH (UK) SUMMER CONFERENCE
9TH JUNE 2024
LIVERPOOL MEDICAL INSTITUTION
We are delighted to announce that bookings are now open for our Summer Conference - it will take place on Sunday 9th June 2024 at the Liverpool Medical Institution.
As usual, the event will be a mixture of talks by the UK's leading Cluster Headache specialists, information sessions and an opportunity to meet and talk with other Cluster Headache sufferers to share experiences and meet and make new friends.
Our medical speakers will take you on a journey through Cluster Headache and other primary headache disorders,...
Read More Posted: March 8, 2024
21st March 2024
TAKE ACTION!
Do you feel imprisoned by cluster headache? Are you isolated in your CH cell?
When the torture stops for a while and you are released into a pain free world, why not TAKE ACTION and help spread the word about the torment and anguish this condition brings?
Arrange an event, display our posters/post them on social media. Take posters to your local GPs, A&Es, DENTISTS and PHARMACIES.
OUCH (UK) car window stickers, awareness badges and printed posters are now available at low prices to mark this year's Cluster Headache Awareness Day:
...
Read More Posted: March 8, 2024
Our conference this year will take place on 9th June 2024 in Liverpool. Full details and online booking to follow.
Posted: November 29, 2023
Please note that recruitment for this study is now complete.
The University of East Anglia is carrying out a study exploring psychological factors involved in cluster headache pain. The study will involve an interview and you will receive a £10 Love2Shop Voucher for taking part!
Full details in the PDF attachment below. If you are interested please contact h.whitley@uea.ac.uk to find out more.
Posted: July 26, 2023
Dr Anish Bahra, Winner of the Les Charlton Award 2023
We are delighted to announce that Dr Anish Bahra, Consultant Neurologist, was presented with the Les Charlton Award at our Summer Conference earlier this month. This award is given to honour the memory of our late, great chairman and we're sure Les would agree with our choice of recipient. Dr Bahra was also awarded an OUCH (UK) Honorary Lifetime Member certificate.
The awards are in acknowledgement of Dr Bahra's dedication to cluster headache/TAC sufferers and to show our appreciation of her continued support of this charity.
Posted: March 21, 2023
We are delighted to announce that bookings are now open for our Summer Conference - it will take place on Sunday 9th July 2023 at the London School of Economics.
As usual, the event will be a mixture of talks by the UK's leading Cluster Headache specialists, information sessions and an opportunity to meet and talk with other Cluster Headache sufferers to share experiences and meet and make new friends.
Our medical speakers will take you on a journey through Cluster Headache and other primary headache disorders, telling you about the current treatments available as well as what studies and trials are on-going and what the future...
Read More Posted: February 24, 2023
Have you ever thought of offering your services as a volunteer? Do you have skills that could help your charity? If you feel you have the time and commitment, OUCH (UK) is looking for volunteers.
Experience in PR, editorial, IT skills or a background in fundraising would be particularly useful. Advice Line volunteers will receive necessary training.
For further information please contact: submissions@ouchuk.org
This is a great opportunity for those of you who want to do their bit for other sufferers and support this unique and much needed charity.
Thanking you in anticipation,
The Board of...
Read More Posted: February 20, 2023
Cluster headache sufferers can never convey the extreme pain of CH attacks and the sense of desolation, despair, dread, fear they live with daily. CH is still often dismissed as just a bad headache, yet the attacks bring the toughest of people to their knees and women say it is worse than childbirth. Only another sufferer can truly 'know' your pain. They are the only ones who need no word of explanation.
OUCH UK is run by sufferers or supporters of sufferers. We are dedicated to ensuring sufferers are not alone, offering support and guidance on the condition and living with it.
How has OUCH helped you? Tell us on the forum!
For more info...
Read More Posted: February 10, 2023
The Yorkshire and Humber Academic Health Science Network (AHSN) would like to invite a small number of cluster headache patients who have personally used a gammaCore device to take part in an NHS England project. The aim of the project is to help improve patient experience when introducing new innovations into the NHS, what can we learn, and what can we improve upon?
The main aim of the project is to increase patient benefit by finding out through an interview how/where patient experience and insight can help improve the way future products or services are delivered in the NHS. Asking for patient insight is very important to this project as we want to collect your real-life experiences and ideas, to make positive changes to...
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Posted: December 19, 2022
We have been advised by the NHS National Patient Safety Group to remind you of safe usage of oxygen during any power cuts, which are likely to happen this winter.
DO NOT USE CANDLES OR ANY NAKED FLAME DURING POWER CUTS.
Oxygen is absorbed into the skin and clothing and even if you have stopped using the oxygen, you are still at risk after switching it off, even if you go into another room. We suggest that you keep a torch and spare batteries near your oxygen cylinder and equipment, or a battery powered lantern, in case of a power cut.
Your oxygen supplier will be contacting you with a similar message and may have already done so.
We are fortunate that the oxygen therapy used...
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