OUCH(UK) Organisation for the Understanding of Cluster Headache


Advice Line

0800 6696 824


Posted: July 26, 2023


Dr Anish Bahra, Winner of the Les Charlton Award 2023

We are delighted to announce that Dr Anish Bahra, Consultant Neurologist, was presented with the Les Charlton Award at our Summer Conference earlier this month. This award is given to honour the memory of our late, great chairman and we're sure Les would agree with our choice of recipient. Dr Bahra was also awarded an OUCH (UK) Honorary Lifetime Member certificate.
The awards are in acknowledgement of Dr Bahra's dedication to cluster headache/TAC sufferers and to show our appreciation of her continued support of this charity. 

Posted: March 21, 2023


We are delighted to announce that bookings are now open for our Summer Conference - it will take place on Sunday 9th July 2023 at the London School of Economics. 

As usual, the event will be a mixture of talks by the UK's leading Cluster Headache specialists, information sessions and an opportunity to meet and talk with other Cluster Headache sufferers to share experiences and meet and make new friends.

Our medical speakers will take you on a journey through Cluster Headache and other primary headache disorders, telling you about the current treatments available as well as what studies and trials are on-going and what the future...

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Posted: February 24, 2023

Have you ever thought of offering your services as a volunteer? Do you have skills that could help your charity? If you feel you have the time and commitment, OUCH (UK) is looking for volunteers.

Experience in PR, editorial, IT skills or a background in fundraising would be particularly useful. Advice Line volunteers will receive necessary training.

For further information please contact: submissions@ouchuk.org

This is a great opportunity for those of you who want to do their bit for other sufferers and support this unique and much needed charity.

Thanking you in anticipation,

The Board of...

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Posted: February 20, 2023


Cluster headache sufferers can never convey the extreme pain of CH attacks and the sense of desolation, despair, dread, fear they live with daily. CH is still often dismissed as just a bad headache, yet the attacks bring the toughest of people to their knees and women say it is worse than childbirth. Only another sufferer can truly 'know' your pain. They are the only ones who need no word of explanation. 

OUCH UK is run by sufferers or supporters of sufferers. We are dedicated to ensuring sufferers are not alone, offering support and guidance on the condition and living with it. 

How has OUCH helped you? Tell us on the forum!

For more info...

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Posted: February 10, 2023

The Yorkshire and Humber Academic Health Science Network (AHSN) would like to invite a small number of cluster headache patients who have personally used a gammaCore device to take part in an NHS England project.  The aim of the project is to help improve patient experience when introducing new innovations into the NHS, what can we learn, and what can we improve upon?  

The main aim of the project is to increase patient benefit by finding out through an interview how/where patient experience and insight can help improve the way future products or services are delivered in the NHS.  Asking for patient insight is very important to this project as we want to collect your real-life experiences and ideas, to make positive changes to...

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Posted: February 9, 2023

Posted: December 19, 2022


We have been advised by the NHS National Patient Safety Group to remind you of safe usage of oxygen during any power cuts, which are likely to happen this winter.  


Oxygen is absorbed into the skin and clothing and even if you have stopped using the oxygen, you are still at risk after switching it off, even if you go into another room.  We suggest that you keep a torch and spare batteries near your oxygen cylinder and equipment, or a battery powered lantern, in case of a power cut.   

Your oxygen supplier will be contacting you with a similar message and may have already done so. 

We are fortunate that the oxygen therapy used...

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Posted: October 25, 2022


Unfortunately we no longer have a Benefits and Employment advisor but if you need assistance there are some very good organisations that can help:

The Brain Charity - https://www.thebraincharity.org.uk/

Disability Rights UK - https://www.disabilityrightsuk.org/

Benefits and Work - https://www.benefitsandwork.co.uk/

Age Concern - https://www.ageuk.org.uk/

Posted: October 21, 2022

Please note that recruitment for this study is now complete.

Researchers at Staffordshire University are undertaking a study to explore people's experiences of 'Living with Chronic Pain in Early Adulthood'. They are looking for adults based in the UK, aged between 18-30 who experience chronic pain to take part in an interview via Microsoft Teams, which will last approximately 1 hour.

If you would like to find out more, please see the information leaflet linked here: https://staffordshire.qualtrics.com/jfe/form/SV_9YpmKKgNgc3ZU46

If you would like to take part, please complete...

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Posted: June 27, 2022

About the Study
We are a team of physicians and researchers at King’s College London studying the management of headaches within our healthcare system. We hope to evaluate patient experiences with headaches in the NHS at every level, from GP appointments to pharmacy and hospital visits. Our objective is to put together an accurate representation of the clinical headache pathway and identify pain-points and inefficiencies, to propose a system-wide redesign of the pathway more capable of adopting digital tools and technologies that can improve patient care.

Who can take part?
We are looking for individuals who have attended the healthcare system in any capacity for their headaches,...

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Posted: June 3, 2022

NOW CANCELLED:   There have not been enough registrations for this event to go ahead and we are very sorry that we've had to cancel it for the time being.  We are all disappointed but there have been a number of factors counting against a face-to-face conference at the moment, including Covid, public transport and cost of living crises.  We will be getting in touch with all those who have booked and will be processing refunds soon.

But please watch out - we will be arranging an on-line conference again soon.

For the first time since the pandemic began, we are pleased to have been able to put together the first physical face to face conference for cluster headaches! 

Our team have...

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Posted: April 29, 2022

Evaluating the Treatment of Cluster Headache with Oxygen: A population-based study (ETCHO-1)

OUCH (UK) is pleased to be collaborating with the headache research team at King’s College London. The study above will expand to Scotland which will explore and develop our understanding of cluster headache.

This will be a questionnaire study with a telephone interview follow up. We endeavour that this study will help us begin to explore who are the cluster headache sufferers who find oxygen a useful treatment.

Oxygen users in the Scotland home oxygen region should look out for a letter asking if they would like to find...

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Registered Charity No. 1091919 | Registered in England Company No. 04339368