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OUCH(UK) Organisation for the Understanding of Cluster Headache

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News

    Free Online Event - Cumbria Headache Forum
    Posted: September 2, 2021

    Cumbria Headache Forum - Cluster Headache - 7th October

    We would like to invite patients as well as medical professionals to join us for the next Headache Forum which is dedicated to management of cluster headache. It will provide insight into pathophysiology of the condition, pharmacological management and neuromodulation.

    Programme:

    • 1:30pm Warm welcome (Chair) - Dr Jitka Vanderpol
    • 1:35pm Cluster Headache - Dr Manjit Matharu
    • 2.15pm Cluster Headache Management in Community Headache Clinic - Siobhan Jones
    • 2.45pm Injectable Treatments...
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    Shaping Future Support: The Health and Disability Green Paper

    Posted: August 19, 2021

    You may like to contribute to this recent Department of Work and Pensions green paper consultation and survey. It "aims to explore how the benefits system can better meet the needs of disabled people and people with health conditions now and in the future... [and] is an important step towards making changes that will improve our services, increase opportunities for employment and help more people to live independently. Our approach must be informed by different views and opinions, particularly those of disabled people and people with health conditions."

    ...

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    New! Donate by Text
    Posted: August 18, 2021

    We now offer another super easy way to donate to OUCH (UK) with our latest text giving service*.  Here's how to do it:

    To donate £1, text OUCH to 70201
    To donate £3, text OUCH to 70331
    To donate £5, text OUCH to 70970
    To donate £10, text OUCH to 70191

    * Fundraising, payments and donations will be processed and administered by the National Funding Scheme, operating as DONATE, a charity registered in England and Wales (1149800) and Scotland (SC045106). In addition to any text donation, you will incur your standard network message charge (based on your...

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    Play our lottery for a chance to win up to £25,000!
    Posted: May 21, 2021

    Here's a new way to support your charity - we've joined a lottery!

    • Tickets only cost £1 per week
    • 50% of all tickets sold from our page go to us
    • Support us and you could win prizes of up to £25,000!

    Buy tickets through the OUCH (UK) page to help our cause.

    Play for a chance to win cash prizes and OUCH (UK) receives 50% of every ticket sold from our page!

    Being part of One Lottery means that with your support we can generate regular sustainable funding. Buying a ticket through One Lottery is one way you can help us to continue to grow and provide our services. So whether you...

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    Join our Zoom call with CH experts inc Prof. Goadsby
    Posted: March 9, 2021

    Update 22/03/21:  A video recording of this event is now available on the OUCH (UK) YouTube channel 

                                              * * * * * * * * *

    Members are invited to join an OUCH (UK) Question & Answer session with CH experts:

    • Prof Peter Goadsby
    • Dr Nicholas Silver
    • Dr Fayyez Ahmed
    • Dr Diane Wei

    This will take place on Cluster Headache Awareness Day, Sunday, 21st March, 2021.

    This is a free zoom event where members can put their questions to the CH specialists live.  Please register...

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    Professor Goadsby wins prestigious award
    Posted: March 5, 2021

    OUCH (UK) is very pleased and proud to announce that their chairman and patron, Professor Peter  Goadsby, is one of four eminent neuroscience researchers who have jointly been awarded the prestigious Lundbeck Foundation annual Brain Prize for their work in the field of neuroscience, with particular regard to the mechanism of migraine, which has led to the development of innovative new treatment for this disabling condition.  The Professor's co-recipients are Professor Dr Lars Edvinson, Professor Michael Moskowitz, and Professor Jes Olesen.

    Professor Goadsby is a world authority on the even rarer condition cluster headache and his commitment to reducing the pain of all those who suffer a severe headache condition is a lifelong...

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    Warwick Study of Mental Defeat in Chronic Pain
    Posted: March 2, 2021

    More volunteers are invited to participate in the Warwick Study of Mental Defeat in Chronic Pain, based at the University of Warwick.  The study is funded by the Medical Research Council (MRC) and is investigating how mental defeat can influence pain sensation, sleep patterns, social activity, physical activity and general health and wellbeing in individuals who have chronic pain.  The researchers are currently looking for volunteers with chronic pain to complete a short online questionnaire.  The questionnaire has three completion time points and participants will receive a £5 Amazon voucher for each time point that they complete.  To find out more, please click the button below.

     

    ...

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    YouTube Live Stream 29/01/21
    Posted: January 26, 2021

     

    As some of you may know, this month is the 1st Anniversary of the OUCH (UK) YouTube Channel.

    To mark this special occasion and for the first time in the history of OUCH (UK), we will be doing a live stream on the channel on Friday 29th Jan 2021 @ 11.00am

    We are going to have some very special guests, including the premiere of the pre-recorded podcast with Professor Peter Goadsby who talks about how Covid is affecting Cluster Headaches Sufferers.

    Below is a schedule and a link to the channel, so make sure you are subscribed and click the bell...

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    Join Amazon Smile
    Posted: November 30, 2020

    Christmas is fast approaching, and if you’re planning to buy gifts from Amazon, why not shop through AmazonSmile, with OUCH (UK) as your chosen charity?

    At AmazonSmile, customers can buy exactly the same products, at the same prices and with the same convenient shopping features as on Amazon. The only difference is that when you shop through AmazonSmile, Amazon donates 0.5% of the purchase price to OUCH (UK), at no cost to you. Every little bit helps us to fund our services.
     
    So far we’ve raised almost £250 through AmazonSmile. It’s very quick to register, so please consider signing up today. Then just remember to start your shop at smile....

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    Mike Pollock Award 2020
    Posted: November 10, 2020

    This year, the Board of Trustees has chosen Corin Ridout to receive this award. In the past, Corin has raised lots of funds and awareness for us on behalf of his brother Glen, a cluster headache sufferer. These events included the London Marathon, Ride London and Swim Serpentine. Sadly, Glen passed away not long before this year's virtual London Marathon but Corin was determined to carry on in Glen's memory. We felt that this was a wonderful example of going the extra mile that we've always associated with the Mike Pollock award and that he is a very deserving recipient.

    Heartfelt thanks to you, Corin, to your family for the continuing support of the charity and to everyone who made such generous donations to this latest event....

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    Vicky Quarshie - Online Condolence Book
    Posted: May 5, 2020

    We are terribly saddened to share the news that Vicky Quarshie, Headache Specialist Nurse at Hull Royal Infirmary, passed away on April 23rd 2020, surrounded by her loving family.

    Vicky was a member of the BASH council, a founder of the UK Headache Specialist Nurses Group and a Trustee of Park Street Performing Arts Centre where she helped many young people to gain confidence and become performers. She was a great champion of OUCH and was chosen for our Les Charlton Award last year. I had the great pleasure to present her with the award in November during a show she arranged at Park Street to raise funds for OUCH.

    Even while she was ill, Vicky was planning what she was going to do next for us. She was such a kind and...

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    New Member Benefit - Shop Discount
    Posted: April 23, 2020

    We have just added a new benefit for members of OUCH (UK).  There is now a 10% discount on purchases from our online shop.  Remember to log in when you want to make a purchase, then add items to your basket, go to the checkout and your 10% discount will be applied automatically. If you aren't a member you may join here. Thank you for all your support!

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