Have you ever thought of offering your services as a volunteer? Do you have skills that could help your charity? If you feel you have the time and commitment, OUCH (UK) is looking for volunteers.

Experience in PR, editorial, IT skills or a background in fundraising would be particularly useful. Advice Line volunteers will receive necessary training.

For further information please contact: submissions@ouchuk.org

This is a great opportunity for those of you who want to do their bit for other sufferers and support this unique and much needed charity.

Thanking you in anticipation,

The Board of...

The Yorkshire and Humber Academic Health Science Network (AHSN) would like to invite a small number of cluster headache patients who have personally used a gammaCore device to take part in an NHS England project.  The aim of the project is to help improve patient experience when introducing new innovations into the NHS, what can we learn, and what can we improve upon?  

The main aim of the project is to increase patient benefit by finding out through an interview how/where patient experience and insight can help improve the way future products or services are delivered in the NHS.  Asking for patient insight is very important to this project as we want to collect your real-life experiences and ideas, to make positive changes to...

We have been advised by the NHS National Patient Safety Group to remind you of safe usage of oxygen during any power cuts, which are likely to happen this winter.  

DO NOT USE CANDLES OR ANY NAKED FLAME DURING POWER CUTS.  

Oxygen is absorbed into the skin and clothing and even if you have stopped using the oxygen, you are still at risk after switching it off, even if you go into another room.  We suggest that you keep a torch and spare batteries near your oxygen cylinder and equipment, or a battery powered lantern, in case of a power cut.   

Your oxygen supplier will be contacting you with a similar message and may have already done so. 

We are fortunate that the oxygen therapy used...

Researchers at Staffordshire University are undertaking a study to explore people's experiences of 'Living with Chronic Pain in Early Adulthood'. They are looking for adults based in the UK, aged between 18-30 who experience chronic pain to take part in an interview via Microsoft Teams, which will last approximately 1 hour.

If you would like to find out more, please see the information leaflet linked here: https://staffordshire.qualtrics.com/jfe/form/SV_9YpmKKgNgc3ZU46

If you would like to take part, please complete the content form and short demographics survey here: ...

NOW CANCELLED:   There have not been enough registrations for this event to go ahead and we are very sorry that we've had to cancel it for the time being.  We are all disappointed but there have been a number of factors counting against a face-to-face conference at the moment, including Covid, public transport and cost of living crises.  We will be getting in touch with all those who have booked and will be processing refunds soon.

But please watch out - we will be arranging an on-line conference again soon.

For the first time since the pandemic began, we are pleased to have been able to put together the first physical face to face conference for cluster headaches! 

Our team have...