We have just added a new benefit for members of OUCH (UK). There is now a 10% discount on purchases from our online shop. Remember to log in when you want to make a purchase, then add items to your basket, go to the checkout and your 10% discount will be applied automatically. If you aren't a member you may join here. Thank you for all your support!
The National Migraine Centre invited OUCH(UK) to take part in a Podcast on cluster headache. This is one of a series of podcasts done by NMC covering several different types of headache condition. The podcast starts with discussion on the particular condition - CH in our case - between health professionals and Charlotte Burr of NMC.
Then member Val Hobbs is asked about what it is like to experience CH and how the condition can affect everyday life. You can listen below or go to the NMC website to also hear more podcasts. For the CH one, scroll through the list of podcasts and CH is in No. 3 of Series 2 . It might be useful to...Read More
Saturday 11th July, 2020 at the Liverpool Medical Institution
DUE TO COVID-19 AND THE LATEST GOVERNMENT ADVICE, WE ARE VERY SORRY THAT WE HAVE HAD TO CANCEL THIS EVENT. WE WILL BE GETTING IN TOUCH WITH ALL THOSE WHO HAVE BOOKED AND WILL BE PROCESSING REFUNDS SOON.
The Trustees of OUCH (UK) are delighted to announce that we are returning to Liverpool for our 2020 summer conference. This will take place on Saturday 11th July at the Liverpool Medical Institution, 114 Mount Pleasant, Liverpool, L3 5SR.
CONFIRMED SPEAKERS FOR THE EVENT:
- Professor Peter Goadsby, Professor of Neurology, King's College Hospital, London, patron and chair of OUCH (UK)
- Dr Anish Bahra,...
As part of OUCH UK continuing support, we are pleased to announce the Official OUCH UK YouTube channel.
This channel will be available 24/7 with videos on various subjects across the board of Cluster Headaches.
We all appreciate the support you give to this community, and moving forward, we hope this is another avenue that you will support.
Can you please all click on the link below, subscribe to the channel and turn on notifications, and you will be informed every time a new video is uploaded.Read More
We're very happy to announce that the winner of this year's Mike Pollock award is Toryn Ahmet Tucker. A most deserving winner, well done everyone!
This young man has really got behind the cause. He's not only a fantastic support to his mum, Clare, who is a CH sufferer but he has also produced a brilliant YouTube video which has been shared throughout the Facebook community and beyond, raising a massive amount of awareness for the condition. If you haven't yet seen it, here's the link:
Many congratulations to you, Toryn and thank you. Mike would be delighted for you to receive this award in his name.
Please note: No further volunteers are required for this study, owing to the high number of responses received. Thanks to all who got in touch. 5/6/19
This is a new study looking at first-hand experiences of people living with either chronic or episodic cluster headache in the UK. Its aim is to get a better understanding of the views of those living with the condition to find out how care and support might be improved in the future.
It will involve a short telephone interview of approximately one hour. To take part, you must be aged between 18 and 65 years old, resident in the UK and be living with either chronic or episodic cluster headache. The study is being conducted by a researcher at the University of...Read More
Sunday 30th June, 2019 - Shepherds Hall, St Thomas' Hospital Campus, London, SE1 7EH
OUCH(UK) are pleased to be able to return to London to present a packed event specifically for cluster headache sufferers and supporters.
As usual, the event will be a mixture of talks by Europe's best Neurologists, information sessions and an opportunity to meet and talk with other cluster headache sufferers to share experiences and make and meet new friends.
Our medical speakers will take you on a journey through cluster headache and other primary headache disorders and tell you about the current treatments available, as well as what studies and trials are on-going and what the...Read More
Look out for the OUCH(UK) online shop selling products to promote awareness of cluster headache. All sales help the charity to support sufferers.
Just click Shop at the top of the OUCH(UK) website to find these eye-catching items and more:Read More
In 2017 we created a new award to honour our late chairman, Mike Pollock. We wanted to do something special in Mike's name and so now, each year, the award will go to a CH hero in the UK - someone who has shown outstanding and compassionate support to cluster headache sufferers.
There was never any limit to the help Mike offered to sufferers; he always went the extra mile, never ceasing to have the well-being of sufferers in mind - so we thought he would approve of the nature of this award.
The first recipient of the new award was Darren Hamilton,...Read More
We have recently been informed that there is a production problem with the Imigran injections [subcutaneous sumatriiptan] made by GSK and that they will not be back in full production until January 2019.
PLEASE NOTE: SUN PHARMA make the generic form of the injections under the name Sun Pharma - subcutaneous sumatriptan injections. We are informed by the relevant section of Department of Health that Sun Pharma have plentiful supplies to take up the shortfall on the GSK injections.
As long as your prescription has the words 'subcutaneous sumatriptan' on it, your pharmacist can supply either GSK or Sun injections.
Yet another first for OUCH (UK), we were invited to attend the first ever Global Patient Advocacy Summit at the 18th Congress of the International Headache Society in Vancouver and Trustee Scott Bruce is representing OUCH along with representatives of 48 other patient organisations from all over the world. The IHS is an organisation of headache neurologists and health professionals and they produce the internationally recognised headache guide for health professionals. This is the first time that patient advocate groups have been invited to attend the IHS congress, and represents recognition of the valuable part that the various groups play in supporting patients in finding diagnosis and treatment.
You can read the press...Read More