OUCH(UK) Organisation for the Understanding of Cluster Headache


Advice Line

0800 6696 824

Advice Line

OUCH(uk) Cluster Headache Helpline

0800 6696 824 

The OUCH (UK) advice line is a messaging service available 24 hours a day 7 days a week. Please leave your name and telephone number and we will get back to you. 
Calls will be returned by one of our trained advice line team. The advice line is monitored throughout the day, and if your call is of an urgent nature we will contact you as soon as possible. 
Please note that calls will be returned from 020 3909 1841.
We fully understand that some people would prefer to contact us via email. If you would prefer this method of contact please email adviceline@ouchuk.org
Samaritans Contact Details
We know that the pain and suffering with CH can cause depression, and for some, lead to very dark places; the Samaritans can help you if you reach that point. 
They now have a free to call mobile phone number: 116 123
If you feel it is too upsetting to talk by phone, you can contact them by e-mail on jo@samaritans.org   Writing an e-mail can be a calm and less stressful way to explain what you are going through.  The Samaritans will respond to e-mails within 24 hours. 
Their national telephone number (charges apply) is: 08457 90 90 90.

The Brain & Spine Foundation

We know many of you suffer from additional health problems, such as back and neck issues.   The Brain & Spine Foundation is a UK-wide charity providing professional support by specialist neuroscience nurses, offering practical guidance and emotional reassurance.  If you need help understanding complex medical information, they can provide clarity.

Helpline freephone number: 0808 808 1000

Alternatively, you may email them on helpline@brainandspine.org.uk



The Brain Charity

The aims of The Brain Charity are to provide advice, information and support to people with a neurological condition, their families and care professionals, and to raise awareness of neurological conditions in the community at large. 

Telephone number  0151 298 2999



Disability Rights UK

Cluster Headaches are classified as a disability in law in the UK.  For more information on this area, you can email them on enquiries@disabilityrightsuk.org








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