Hello everyone my name is Richard, this is my first post so please bear with me.
Having recently been diagnosed with CH earlier this year I am trying almost anything to try & help prevent an attack. I am taking verapamil, which has helped reduce the frequency of the attacks & they do not seem to be as painful (maybe I am getting used to the pain? If you could ever get used to it!) After a battle with my local GP, with the help of the neuroligist I now have oxygen, which is a godsend.
I am still struggling to come to terms with it all, as it just started for no reason. It has effected my every day life, I am just grateful I have a lovely kind & caring wife & that I work from home.
Has anyone tried acupunture? Did it work for you. As I am seriously considering trying it
Wishing you all a pain free day, evening, life
Best wishes
Rich
Joined: Tue, 02/06/2026 - 10:25
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Submitted by Colin Allen Vi… on Fri, 05/07/2024 - 14:45
PermalinkHi Rich,
Hi Rich,
Ive not tried acupuncture,although I've tried just about everything else. Are you on the correct dosage with Verapamil? It would be worth giving our advice line a call so they can go through a few things with you. Good luck if you try acupuncture.
Joined: Fri, 22/05/2026 - 05:57
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Submitted by Flattop on Sat, 06/07/2024 - 13:30
In reply to Hi Rich, by Colin Allen Vi…
PermalinkHi Colin,
Hi Colin,
Thank you. I've just got back from my first session of acupuncture. My last attack was Wednesday evening. So I will see how it goes. Am keeping everything crossed that it helps/works.
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Submitted by Dorothy on Mon, 15/07/2024 - 11:37
In reply to Hi Colin, by Flattop
PermalinkHi Rich
Hi Rich
I tried acupuncture years ago but it did nothing for me. Did you ring our advice line for a chat? Hope things have improved for you.
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Submitted by Lymestoney on Mon, 15/07/2024 - 12:08
PermalinkHi Richard. I haven't tried
Hi Richard. I haven't tried acupuncture but sumatriptan injections work really well for me
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Submitted by Flattop on Sat, 20/07/2024 - 09:23
In reply to Hi Rich by Dorothy
PermalinkHi Dorothy,
Hi Dorothy,
Thank you for your message. I've had 3 sessions of acupuncture now, but I don't think it's helped me either.
I was willing to give it a try, to try & break the cluster. Been suffering since February, the longest period without an attack, was almost 2 weeks. I thought/was hoping that they'd stop & I'd get a longer break from them.
I have called the advice line a couple of times, they were very helpful, understanding & gave me some good advice.
I hope you are painfree & have a nice weekend
Joined: Fri, 22/05/2026 - 05:57
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Submitted by Flattop on Sat, 20/07/2024 - 09:27
In reply to Hi Richard. I haven't tried by Lymestoney
PermalinkHi Lymestoney,
Hi Lymestoney,
Thank you for your message.
I've not tried the sumatriptan injections, as the spray does work for me.
Hope you have a lovely weekend
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Submitted by Lymestoney on Sat, 20/07/2024 - 10:07
In reply to Hi Lymestoney, by Flattop
PermalinkI'm glad the spray works for
I'm glad the spray works for you --