Hello - New Member
Hello - New Member
Hi
Just wanted to say hello. I was luckily (?!) diagnosed with CH very quickly: went to GP in December, got confirmation from the Neurologist in February.
It appears I'm still in cycle having had no more than few days reprieve. And what a fun and dramatic few months it's been! Tears, head-banging (Not the fun Slayer kind), insomnia, work anxiety and slips into depression.
I'm still trying to decide which side quest is the most fun: the Sumitriptan injection lottery OR trying out the well meaning suggestions from friends and aquintances; 'Yes I did try hugging a tree barefoot and no, I still felt my brains trying to surge forth through my eyeball'
I think, I just wanted some reassurance on the typical length of some other members' bouts?
I have 3 children, one of whom is 7 months old and I work as a teacher - it's been a struggle. I'v bounced around OH, and being signed off for a week only to return a few days and then it all begins again. Stress and loud noise seem to make me more prone to attacks. Given my personal situation kinda feel this is like a fish who says he doesn't like to get wet.
I'm cautiously upping verapamil due to low heart rate but hope it can prevent the frequency. Attacks are less intense once I take a sumitriptan injection but occasionally I enjoy a real tear jerker regardless. Between attacks I often feel generally unwell, exhausted and grumpy. My wife and kids deserve a medal for patience...
I know there's some light at the end of the proverbial but was hoping for some shared experience on how other members cope and what to look out for.
Thanks
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Welcome to the OUCH forum, sorry you have to be here.
Everyone has a different experience with CH. Episodal Cluster Headache bouts can last for a couple of weeks or go on for months. My last bout lasted just under four months.
Sumatriptan injections work better for some people more than others. Did your Neurologist suggest 100% oxygen as a treatment? This has been a God send for a lot of sufferers to stop an attack.
Thank you Phil. Good to know. And yes, the Neurologist has told my GP they can arrange for oxygen as a next step.
Also a new member. I'm amazed at how similar so many of the experiences seem to be, left side, watery eye, toothache etc etc. My episodic CH's went undiagnosed for ten years, until a few years into marriage and my medical wife, albeit a Gastroenterologist, picked up on it. Currently enjoying a 14 day 2-a-day bout of CH episodes. The comments on the site have encouraged me to go back to the GP for help beyond the Sumitriptan nasal spray. Pleased to have found this group.
Kelvin
Welcome to the forum Kelvin, sorry you have to be here.
You have indeed found a good group: Our charity's Trustees and Officers, all either supporters of a Cluster Headache sufferer, or sufferers themselves, work tirelessly to help other CH sufferers, also raising awareness of the condition to the public and GPs.
A referral to a Neurologist that specialises in headache would really benefit you; high-flow 100% oxygen and sumatriptan injections are treatments that work well for a lot of sufferers.
You should give our advice line a call, they'll help you on your journey.