Hello all !!new to site
Hello all !!new to site
Hello all,
Dave here introducing myself,i am a forty year old guy who lives in not so sunny devon with my partner and three goblins (time of year i guess).I am the keeper of this little old demon which pop its head up three to four time a day and has been doing so for just over fourteen years.Eight of those years were undiagnosed and i am sure we all have many a tale of doctors not being sure what to do/say which is no fault of their own in my opinion.With regret i gave up work a few years ago as being a builder and haveing attacks on site was taking its toll on me physically and mentally.Any way back to point,i have tried several medicatations and have stuck with the imigran and oxygen route.I started to look at some of the newer forms of treatment,while doing this i began to get an increasingly sore ear ,this turned out to be ottis media,so i was despatched for a ct scan.On reviewing the scan it became apparent that there is a clearly visible cist on my brain (oh the joy) so currently my situation is waiting to see what course of action needs to be taken.So here i am i hope to be able to get advice on medication /benefits etc.Benefits is a real concern as i recently had a pip assesment and was awarded zero points( large sigh) but anyways thats me basically ,,,please feel free to heckle me if this introduction is a bit of an old wet dog .......
Dave
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Hello and welcome to the site.
There is plenty of help and advice here- and even a bit of humour!
Sorry to hear of your predicament- the benefits issue is a right pain- as if we dont have enough to contend with! I lost my job last year because of the condition (well, to be fair, I was off sick more than in attendance so I cant blame them), so I understand what you are saying.
DO contact the helpline asap! To qualify for PIP, you must be affected at least 50% of the time, and if this is the case for you, they really can help in reviewing this decision, (and hopefully getting it overturned on appeal)! I've said this before in other posts, but I had a 'spy' at the DWP, who told me that - and I will paraphrase this- they try and turn everyone down on the first application, in the hope that they will give up and go away.
Theres loads of medications out there, and sometimes it may be a case of trial-and- error until you find something to control the Beast. You say" Imigran". Are you just taking the tablet? A lot of CH-ers dont find this helpful and use variations on Sumatriptan (either spray or injections). May be something to discuss with your doc/neuro ..? The O2 usually does the job though.
Theres a Facebook page as well, and if you are into that kinda thing, you can have a chat with other CH-ers there. I'm told there are some lively discussions at 3am amongst those who are woken from their slumbers by the Beast!
Miss KB
MissKittyB.
Welcome Dave, sorry to hear about the cyst you have, keep us posted with how you get on. Miss Kitty has said all I would have said re: PIP and would add you can get assistance from the CAB or we can put you in touch with The Brain Charity who assist sufferers of all neurological diseases with things like benefits applications.
Val.