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CLUSTER HEADACHE AWARENESS DAY MARCH 21st 2018

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#1 Wed, 07/03/2018 - 14:09
Val
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CLUSTER HEADACHE AWARENESS DAY MARCH 21st 2018

JUST A MINUTE!

OUCH NEEDS YOU!  We are asking for volunteers from among sufferers to imagine you have one minute to tell your CH story by answering the following questions, to make non-sufferers aware of the most painful condition known to man. 

How do you describe the condition to someone who hasn’t heard of it?

Did you receive appropriate medication from your doctor?

Were you referred to a headache neurologist?

How long did it take you to get a diagnosis?

What do you think is the most pressing concern for cluster headache sufferers?

 

answer the  ‘One Minute’ questions here

OUCH (UK) will be issuing a press release on the day.

Please be aware that we will only be approaching one or two volunteers to further tell their story to the media.  Further, there is absolutely no guarantee that we will receive media attention as there are several awareness/international days relating to various health conditions in March, but those volunteering their stories must be prepared to be interviewed by the media if they follow on from our press release.

On behalf of the Board and Trustees of OUCH (UK).

Sat, 17/03/2018 - 10:23
Dorothy
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Wed, 21/03/2018 - 08:31
Dorothy
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The Cluster Headache Awareness Day ( CHAD) organized together with the EHA Cluster Headache Special Interest Group [CHSIG],
Will be held today in Paris!
During the event different important topics regarding CH will be discussed such as personal experiences, current
situation and difficulties, new treatments and possibilities as well as alternative therapies.
Read more --https://www.europeanheadachealliance.org/…/cluster-headach…/

#forCHfuture

 

Wed, 21/03/2018 - 11:20
Dorothy
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A MESSAGE OF HOPE for CH AWARENESS DAY

TOWARDS A PAIN FREE FUTURE

My favourite part of my CH story (from 19yrs to 70) which I read at the conference on Sunday.

Even with cluster headaches for 51yrs, I've still managed to have a very happy life, brought up three amazing sons, enjoyed my grandchildren and was lucky enough to keep the same long suffering husband for 52 years (so far) and I'm still enjoying a fantastic life.

I know others have suffered much more than I have but I do have faith that there is hope for their future. When I look back at the dark years (decades of no treatment) I realise just how far we’ve come and we have the top experts on a mission to help us. There is progress and there is hope.

So keep the faith folks - the future looks brighter and meanwhile you have your CH family to lean on. #forCHfuture

Thu, 22/03/2018 - 09:55
Dorothy
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