Falling down
Falling down
Good evening all
well I've not been on for a while. I've been struggling over the past few weeks with my emotional state. I started back in Feb and I'm still in the mids the same bout. I've been seeing my neurologist on a regular basis. I was on varapamil worked my way up to 960 mg found that I was still having the attacks but just at a lower level. It resulted in me being able to go back to work which was great. After a few months.me and my neurologist decided to start lowering my meds to see if the bout had ended as well for myself get a better quality of life back. Like I'd be able to walk up the stairs with out sounding like I'd just ran a 10k. After dropping to 480 I was having full blown attacks again needing injection on a regular basis. I'd almost forgotten how much of a kick they had. Lol.
Anyway I'm back up to 800 mg I've started on but my bout is still kicking my ass feel like I'm loosing myself, but the sad thing is I can see I'm closing myself to everyone but not stopping myself.
i suppose what I'm asking is...if your cch when did you find out and how did that change things for you? do you have any tips for coping? it's getting on 9 months I'm just hitting my first really low point.
Thanks
mike
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hi mike, glad to hear from you again, sorry to hear your down as i was jan this year, ive had cch 7years had little or wrong info from my gps and confusion with the nuro, so bin thro the mill meds wise, i was told i was one of only 5 chers in the country having no inter web and learnig problems lost my job last dec, didnt know how to claim so lost jan money so was looking at being homeless so was verry down and alone, since a chance mention of ouch by a nurse i found out from them for the first time in 7 years; its for life,no cure no reason for it starting, triggers! benifits!! injections!!! and most importantly pepol that have and do suffer the same poblems and espsaly the pain, the relenless lack of sleep, sincse then ive come to terms with my self, it cant get any more panful it wont kill me or cause permenante brain damage i hope, cant give a time to be any where or garrantee i can make an avent, i take one day at a time and do what i can when i can, some days just wont let up pain wise and i just have to rite them off, good sence of humor getts me thro the hard times, being nuts helps, have you got o2? ive always got time and a smile and willing to listern all the best dh
hI bOYS BEEN cHRONIC FOR WELL OVER 12 YEARS, i AM KNOW AT THE STAGE WHERE i AM WAITING FOR SOMETHING NEW TO TRY, WAS ON pROF g TRIALS, BUT FOUND OUT i HAD A HEART ATTACK, AM ON nothingexcept dIAZIPAN tAMAZIPAN, AND MELATONINE, i HAVE HAD EVERY TREATMENT OUT i DO HOPE YOU BOTH FIND SOMETHING
hi brian, ive bin following your posts, and yes youve bin through some treatments, im 8ish years cch, i only found out last jan the ins an outs of ch from ouch, and one of our members has turned my life around in more ways than i can put here, so i know that dark place we call rock bottom wen we hide behind smiles an say it ok, 12 years would like to hear your story some time, and mike hope your feeling better? giz a message if your still down, i know being born on the wrong side of the pennines is hard, i dont think you can even see yorkshire from your place, if your up for some banter and a smile send me your finest carrier pidgon an i try not to eat it, chin up mate d