News

Log your CH attacks and contribute to research

MyClusters is a dedicated cluster headache tracking and analysis app that makes it easy to log your cluster attacks and get personalised insights into your triggers and attack patterns, monitor your medications, and more.  With MyClusters you can also rate your overall days based on general discomfort and challenges. 

MyClusters was built by a cluster headache sufferer after a 10 month bout of multiple daily attacks.  Logging an attack takes less than 20 seconds. 

MyClusters is building partnerships with leading cluster headache researchers across the globe.  You can choose to share your data so that your attacks can contribute to more studies… Read More

We have had a little flurry of fundraisers joining the effort to raise vital funds for our charity and they’re already proving what community power looks like. Each fundraiser is stepping up in a meaningful way to help us reach more people in need of our help and advice.

Together, these supporters are bringing fresh energy and real momentum to our mission. Every donation and shared message will make a direct difference, helping turn kindness into tangible support through our advice line and in-person meetings.

We’re incredibly grateful for the time, effort, and passion these fundraisers are bringing. If you’d like to get involved, whether by donating, sharing or organising your own fundraiser now’s the perfect time to jump… Read More

This study forms part of the Advanced Physiotherapy Master’s degree course at University College London. 

It will look at participants' reasons for and experiences of attending A&E for help with their persistent pain.

The researchers are seeking volunteers to attend an online interview about their A&E experiences.  Recruitment will be open until 20th August 2026.

For more information and details of how to take part in the study, please check the Recruitment Poster.

OUCH (UK) SUMMER CONFERENCE 

14th JUNE 2026

THE EXCHANGE, BIRMINGHAM

OUCH UK is delighted to be heading to the heart of the West Midlands for our 2026 Summer Conference. Whether you are a sufferer, a supporter or a medical professional, this is a vital opportunity to connect, learn and share experiences in a supportive environment. Bookings are now open 

Why Attend?

Cluster Headache is often called "suicide headache" due to their intensity. Our conferences are designed to ensure no one has to face this condition alone.

Expert Speakers: Hear from leading neurologists and headache specialists about the latest trials, research and treatments.

Community Support: Meet… Read More

Birmingham Conference - Sunday 14th June 2026

We are delighted to announce that this year's conference will be held in Birmingham at The Exchange on Sunday, 14th June, 2026.   

Full details and online booking will be released shortly. 

Members will receive a 50% discount on the £12 ticket fee. Join or renew your membership.

 

Tracy is running to raise funds for OUCH (UK), the only UK charity dedicated to supporting people living with Cluster Headache, often called the “suicide headache” because the pain is so intense.

Cluster headache is:

Sudden, excruciating, one-sided head pain So severe, some sufferers describe them as unbearable Misunderstood and often overlooked

 

Tracy set herself a fundraising goal of £1,000, and thanks to your kindness we’ve already raised £558.20 (55.8%)! "Every step I take in training and on race day is for those fighting through unimaginable pain."

Here’s how you can help:

 

Donate – any amount, big or small, makes a difference Share this post – awareness saves lives Support OUCH… Read More

Support Lynne’s Highland Swing Challenge! 

Our amazing supporter Lynne is taking a leap of faith… literally! She will be strapped beneath a bridge in Killiecrankie, plunging 15 metres in free fall before swinging 40 metres above the River Garry 

Lynne has lived with the devastating impact of cluster headaches since 2017 and she credits OUCH UK for giving her support, guidance and hope when she needed it most. Now she is giving back in the most courageous way!

Lynne’s goal is to raise £200 and every single donation big or small helps us continue our vital work supporting people living with cluster headache.

You can help! 

Donate today: https://ouchuk.org/civicrm/pcp/info?reset=1&id=26… Read More

Log your CH attacks and contribute to research

MyClusters is a dedicated cluster headache tracking and analysis app that makes it easy to log your cluster attacks and get personalised insights into your triggers and attack patterns, monitor your medications, and more.  With MyClusters you can also rate your overall days based on general discomfort and challenges. 

MyClusters was built by a cluster headache sufferer after a 10 month bout of multiple daily attacks.  Logging an attack takes less than 20 seconds. 

MyClusters is building partnerships with leading cluster headache researchers across the globe.  You can choose to share your data so that your attacks can contribute to more studies… Read More

 

A huge THANK YOU to everyone who attended our conference on Sunday 8th June at the RVI in Newcastle and helped make it such a success. We'd also like to thank our sponsors, electroCore, for their generous support. Last but not least, to all our speakers on the day - thank you for your continued and valued support, expertise and advice. We really couldn't do it without you.

As promised we have added all the conference presentation slides to our website, Simply select the Meeting Presentations section on the Downloads page and they are all there as follows in PDF format:

Session 1. An overview of the diagnosis and treatment of Cluster Headache and The Trigeminal Autonomic… Read More

OUCH (UK) CLUSTER HEADACHE CONFERENCE RVI, NEWCASTLE. SUNDAY, 8TH JUNE 2025. 

Don't miss the first OUCH (UK) Cluster Headache conference in the North East since 2018!

Professor Peter Goadsby, Consultant Neurologist, King's College Hospital, London, Patron and Chair of OUCH (UK) will be the keynote speaker. Professor Goadsby is a world authority on Cluster Headache, and one of the winners of the Lundbeck Brain Prize. He will outline how severe this lifelong and incurable condition is and look at diagnosis and treatments.

The pain of cluster headache is excruciating and can drive sufferers to despair. Sadly, it has driven some to end their lives, hence the nickname "suicide headache". It destroys relationships,… Read More