I've been a member on here on and off for a few years and a CH sufferer for around 20 years or so.
I am now in my 50s and thankfully haven't suffered a cycle for around 8 years...always spooked though, especially this time of year when the light changes as this was always my time around April-July.
When I first went to my GP around 20 years ago I had to explain everything at the time...it seemed I knew more about the condition than he did. I had the usual migraine treatment suggestions, followed these, tests etc...eventually it was accepted I had CH and I was prescibed Sumatriptan etc. On one of my last cycles I was given some oxygen at the hospital I was working at and this helped enormously when I had an attack.
My issue now is the GP has changed and I've lately found out I was never officially diagnosed! Equally, they can find no record of prescriptions etc so I can't be precribed oxygen. Interestingly, they will prescribe sumatriptan.
Not quite sure what to do...I know the path to diagnosis is a long one some times.
Thank you all.
Login to add comments