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Shadows and rebounds

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#1 Sat, 23/08/2014 - 23:25
MelodyT
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Last seen: 9 years 2 months ago
Joined: 26/02/2014 - 15:05

Shadows and rebounds

I wonder if somebody could define for me what shadows and rebound CHs are?

i have an aching head after a CH, is this a shadow?

and rebounds, are they the recurring CH? 

I get about 4 or 5 CHs most nights, are 2,3,4 and 5 rebounds?

thank you

melody

Mon, 25/08/2014 - 11:16
Val
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Last seen: 11 hours 32 min ago
Joined: 21/03/2012 - 15:16

Hi Melody

Shadows can take the form of all the autonomic symptoms (watering eye, blocked or runny nose etc) without the full blown pain of an attack, or it can be just a niggling low level pain in the usual CH 'spot'.

Rebounds usually occur within a very short time of having aborted an attack, and are full blown attacks.  These can occur if you come off oxygen therapy too quickly, you need to stay on it for a good five to ten minutes after the attack has gone and rebounds can occur if you are on an abortive that isn't really strong enough for CH, such as the dreaded codeine based drugs, or really any tablet form medication.  anything you take by mouth [as a drug worker you probably know this] has to be absorbed by the gut, so takes too long to knock an attack on the head, IF it works at all.

Hope that helps, and please bear in mind I am NOT a doctor or health professional, the above is my own conclusions drawn from other member's experiences.  I have never had oxygen rebound or Imi injection rebound in 14 years of  using Imigran jabs.

Val. ;)

Tue, 26/08/2014 - 12:57
MelodyT
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Last seen: 9 years 2 months ago
Joined: 26/02/2014 - 15:05

Oh my goodness Val, thank you so much. I honestly thought I was just having perpetual recurring CHs on a 90 minute loop...... BUT I might actually be causing these myself.... I always finish with the oxygen, the moment I feel the CH going (for me, the sign for that is when I can actually open my eye), so I am probably not using the oxygen right!

i promise you, you have been more help to me than any GP that I have seen, thanx

Tue, 26/08/2014 - 14:45 (Reply to #3)
Colin Allen Vic...
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Last seen: 16 hours 7 min ago
Joined: 21/03/2012 - 15:19

Make sure you stay on the 02 for at least 5minutes after the attack is aborted,just to make sure it has been dealt with properly.

Colin Allen

Vice Chairman

Tue, 26/08/2014 - 19:54
MelodyT
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Last seen: 9 years 2 months ago
Joined: 26/02/2014 - 15:05

Yep, I think this is a BIG mistake that I'm making ALL THE TIME! 

Now when I get an attack in day or evening I will certainly stay on 02 for longer after attack, but I think the reason I stop too early in night time attacks is because the CH physically exhausts me, I tend to just fall asleep straight after.... So I'd be worried I'd fall asleep with oxygen mask and 02 still flowing..... Would that be a problem? Obviously probabably not desired, but realistically it's gonna happen!

Tue, 26/08/2014 - 20:43 (Reply to #5)
Colin Allen Vic...
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Last seen: 16 hours 7 min ago
Joined: 21/03/2012 - 15:19

It's an old problem,Melody. Cut through the head strap and hold the mask against your face. If the 02 runs out and you fall asleep,the mask will automatically  fall away.

Colin Allen

Vice Chairman

Tue, 26/08/2014 - 21:36
MelodyT
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Last seen: 9 years 2 months ago
Joined: 26/02/2014 - 15:05

Thank you Colin and peter.... I'm feeling a bit positive tonight, first time in a long time!

Sat, 04/07/2015 - 15:56
LWB21
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Last seen: 8 years 6 months ago
Joined: 01/07/2015 - 11:25

Hello, 

I wonder if anybody can help me .... Well more my wife ! She has always suffered particularly badly with her  CH attacks but this week been almost unbearable to deal with. 

When she describes to me what is going on she explains a constant aching (at a scale of 7) all day and then recovering her full force attacks every 3-4 hours which we use the high flow oxygen to try and abort (have also tried the injections). 

This has been going on for a full week now and she has been absolutely bed ridden. We have tried all sorts of different things, red bull and oxygen, no oxygen during full force attack, staying on the oxygen longer. 

I managed to get the doctor to prescribe her a course of steroids (prednisone) and that was on Wednesday this week, but still no help and getting rid of this constant ache or the spikes/attacks. 

Just wondered if there was anything else to try to get rid of the ache. 

She takes Verapamil as a preventative at the moment in case anybody needs to know that or if that is interfering ! 

 

Just would like to know she isn't alone and this has happened to somebody else and that it will go away. 

Sat, 04/07/2015 - 15:58
LWB21
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Last seen: 8 years 6 months ago
Joined: 01/07/2015 - 11:25

*recieving her full attacks - stupid auto correct !

Thanks

Tue, 08/09/2015 - 10:28
AndreS
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Last seen: 2 years 2 months ago
Joined: 26/02/2014 - 15:14

Hi LWB21,

if I see it right, your post is a bit older(?), but still it may be helpful. In particular bad times I also got cortisone, but in a very high dosage:

for 5 days: 1000mg intravenous (diluted in water via a drip, takes ~45 min to get in) per day.

From then onwards: Prednison, starting with 250mg/day. Slowly reducing, I think every three days 20mg (or 25mg) less. So overall, it took ~3-4 weeks until I was off the cortisone again.

For some people, that actually ends the bout. It never worked for me though. But still, I had ~3 weeks no CH at all. When cortisone levels dropped too far, CH came back.

BTW, 1000mg i.v., the side-effects (like sleeplessness) of cortisone do not increase with the dosage, i.e. it is no different to 200mg prednisone tablets or so... No fear to try it...

All the best,

Andre

P.S. That was in Germany, treatment ordered/prescribed by a CH specialist neurologist. Drip was done by the GP.

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