OUCH(UK) Organisation for the Understanding of Cluster Headache


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0800 6696 824

Reoccurring CH

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#1 Sun, 12/05/2024 - 17:05
Last seen: 1 week 4 days ago
Joined: 16/03/2024 - 15:13

Reoccurring CH

Hi lucky I haven't had severe CH for many years. Only the occasional bout.

I was given oxygen,  Steroids etc for a good while 20 yrs ago and the Steroids changed my life.

Now my CH have returned with a vengeance with awful Shadows. So much so I have had to retire.

I am waiting for a Neuro appointment,  but my gp has put me on Amitriptyline is this medication known to work.?

Any advise please. 

Sun, 19/05/2024 - 11:12
Last seen: 1 week 2 days ago
Joined: 29/03/2023 - 00:01

Hi, I've tried amitriptyline, but they don't really work for CH, as they are an anti depressant, typical GP response really as they don't really understand CH.  Be aware that amitriptyline contain serotonin, which can be a contraindication with sumatriptan injections, if you are taking them, I'd wait for your neurologist appointment and discuss fully with them first. 

Tue, 28/05/2024 - 10:49
Dorothy Trustee
Dorothy Trustee's picture
Last seen: 8 hours 4 min ago
Joined: 19/02/2014 - 10:16

Ring the advice line to see whether you've been referred to a headache specialist. They will point you in the right direction. 0800 6696 824.

Dorothy (Trustee)

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