How has your life changed since being diagnosed with cluster headaches ?
I have episodic cluster headaches which seem to come alternate years. I also juggle chronic migraines, primary stabbing headaches and allodynia. I can't tolerate Various meds such as verapamil, candasartan or toperimate. I was having GON blocks but they didn't work so moved over to Botox which now isn't working so having a mixture of GON, SON and Botox. Oxygen was okay but made me nauseous, I also tried gammacore but it didn't really work for me. Next week I'll be meeting the hospital to possibly start the antibody treatment.
so my question is: How has your life changed since being diagnosed with cluster headaches ?
mines constant uncontrolled nausea, constant photophobia so I wear sunglasses most of the time, recurrent falls and numerous abscences from work. I'm taking more time for self care to reduce stress etc. Just wondered if anyone else in the same boat and how they have managed through self help. Etc
Cluster headache, Primary stabbing headache and Chronic migraine sufferer, ME/CFS and Fibromyalgia sufferer
Login to add comments