Hi all
Just wanted to share with the wider community my first time use of Pregablin. I have seen some bad media about this drug, and like most CH sufferers I try and keep up to date on possible medications, as in my experience the GP community can be a touch hit and miss.
I am a long term CH sufferer in my 50s and have previously tried most medications. I was moved onto Gaberpentin by a Neuro-Consultant which worked well but made me giggly stoned! I could shift through the gears up and down the dosing levels carefully but not in too long a period.
I had moved to new consultant who advised I swapped to Pregablin. 300mg per day in bout which was then doubled to 600mg per day by my GP as the bout turned into a nasty one.
My summary of using it:
- This is the most addictive drug I have ever taken. I had never experienced any withdrawl symptoms before this.
- Slow ramp down to reduce dosage.
- It destroyed my ability to get to sleep - almost like my body had forgotten how to.
- When I did manage sleep - vivid night terrors even if asleep for a short period of time.
- Heart rate and BP all over the place.
- Appetite through the roof
- Headaches (ironic I know for a CH sufferer!)
- Dizziness that caused me to fall over a couple of times.
- Limited real impact on reducing the pain of the attacks, but a general feeling of warmth and not giving a sh1t.
In short I am going back to Gaberpentin as and when for my next bout.
Not sure if this will help anyone as I appreciate we are all individuals when it comes to medication. But having checked with my pharmacist, the addiction point is worth noting for anyone.
