OUCH(UK) Organisation for the Understanding of Cluster Headache


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Perfume triggers

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#1 Thu, 09/05/2024 - 17:18
Last seen: 1 week 3 days ago
Joined: 10/02/2022 - 22:20

Perfume triggers


I'm wondering if anyone else has had attacks triggered by perfume. 
I've just come from an appointment with a neurologist who told me he had never heard of perfume/air fresheners triggering attacks. 
I am now starting to second guess my diagnosis and treatment which had been working well.



Thu, 23/05/2024 - 18:49
Last seen: 5 days 23 hours ago
Joined: 26/02/2014 - 17:02

Solvent, alcohol and perfume smells are common triggers during a bout. I'd advise you seek a Neurologist that specialises in Cluster Headaches and other TACs (Trigeminal Autonomic Cephalalgias)

I'd be more use than your current Neuro. Biggrin

Give the helpline a call, they know all the good Doctors.

Tue, 28/05/2024 - 10:45
Dorothy Trustee
Dorothy Trustee's picture
Last seen: 8 hours 33 min ago
Joined: 19/02/2014 - 10:16

Is your neurologist a headache specialist?  I agree with Phil, you need to see a neurologist who specialises in Cluster Headaches and other TACs and the advice line can help you with that. Perfumes are a known trigger for lots of CH sufferers. Give the OUCH Advice Line a call on 0800 6696 824.

Dorothy (Trustee)

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