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#1 Thu, 08/05/2014 - 10:38
Kimm
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New to the forum

Hi, i have just joined the forum and wondered if anyone could help me with a few questions. My concentration lacks what it used to so I apologise for any mistakes but reading through posts everyone seems so lovely anyway..

 

i am a registered childminder, I only got diagnosed in January after being fobbed off and having hormones and contraception to be blamed. Finally found a doctor who understood and was so kind and helpful. He offered to sign me off work but i wanted to continue as long as I could, this time they started in December, I had a 2 week break at the end of February and they were straight back, I hadn't recovered from the first lot and they were back. It's got to the point now where I feel like I am loosing the plot and I just don't know what to do anymore, I don't feel it is fair to the children I childmind for , or my own children for that matter, for me to continue to work at the moment, but it's not a job where I can just take time off, for me to close my business down it will take a long time to build back up, and I worry by then ill be ready to start the next lot. I have 5 attacks a day, 2/3 of which r in the night depending on the time I get to bed , my children still don't sleep through the night most off the time and I fear going to sleep as I know what's coming, then in the day I fall asleep stood up or I'm the middle of a conversation, I'm so confused n end up doing things like leaving the gas on , putting keys phones places I can't find. Put other halfs sandwiches in the dish washer the other day. My paper work is all behind and the daily reports haven't been done in ages, if I try to read something it takes ages and then it's like my minds gone blank .. Is the concentration/ confusion down to lack of sleep? Or is it a part of clusters?, has anyone been in a similar situation with work and been self employed, do I try n push through or admit defeat? Is there any hope of things looking up? 

 

Thanks in advance

kim

Thu, 08/05/2014 - 16:11
Mike
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Hi Kim,

 

Sorry to hear you are struggling so much. Have you had a formal diagnosis from a neurologist? What medication are you taking?

regards

Mike

 
 
 
Chairman OUCH UK

Thu, 08/05/2014 - 17:30
Kimm
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Yes I have now, took some doing as they weren't interested at first. I have the oxygen which is a life saver but its so hard as i have 5 children in the house 2 babies which just want to touch snd play with the wire on the mask, i use 1 b10 ( i think its called, the big ones) and 4 portables a week and sutrmiptin/imigran injections but they send me straight to sleep n make my body feel funny so can only take them when my kids r in bed and my partner is home, usually it's one a day but i can't always have one.. He was trying me on some preventative but had a problem with my ECG, I go back to discuss results n new options on Tuesday  

Sun, 11/05/2014 - 18:50
Mike
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If you have a problem with ECG's it is probable that he was trying you on Verapamil. Effective after a while as long as you dont have any problem with the ECG. Be careful about how much O2 you take, from the sound of it you are using a lot and it can cause "rebound attacks."  If you have to use the O2 just keep on it for ten minutes or so after the attack has stopped.

 
 
 
Chairman OUCH UK

Mon, 12/05/2014 - 09:35 (Reply to #4)
Kimm
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That's what it was, yes. I will find out tommorow what the next steps are. I was told to use the O2 for each attack, for 20 minutes? I never really had much information to be honest. Sorry to sound silly but what are rebound attacks?  Thanks for the replies 

Tue, 13/05/2014 - 17:06
CBailey
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Welcome to the forum Smile Hope today's meeting went well?

Arise and be all that you dreamed.

Tue, 13/05/2014 - 18:10
Mike
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Kimm, rebound attacks is a loose term that many sufferers get when using oxygen. You have an attack, use Oxygen, the attack stops and then an hour or so you have another attack, You then get in to a cycle where you keep taking O2 and keep getting attacks. Two things can help. One try and stay on the O2 for ten or fifteen minutes after the attack finishes or two, get hold of one of our demand valves.This is quicker than high flow O2 and tends not to cause rebound attacks

 
 
 
Chairman OUCH UK

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