OUCH(UK) Organisation for the Understanding of Cluster Headache


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New to CH

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#1 Mon, 09/03/2015 - 21:12
Simon Butler
Last seen: 9 months 1 week ago
Joined: 06/03/2015 - 17:43

New to CH

  • Hi everyone I am Simon 45 from Devon , just been diagnosed with the dreaded ch 3 weeks ago !! Reading everyone else's conditions mine at this point are no ware near as bad as some of your other suffering this horrible thing . My so called beast started coming 4 weeks ago, the first week only when I drunk !! Instantly I gave up drinking , the next week it was bedtime every night , this week it's bedtime and during the day at about 12 . I have my sumatriptan tablets to abort they work but are slow to work, they have just put me on amitriptyline to prevent ( only started these today )  . I asked about sumatriptan injections my GP said the next thing she would get me to try is sumatriptan nose spray ( trying this tonight) .
  • many thanks and best wishes Simon.
Mon, 23/03/2015 - 22:06
Shep1138's picture
Last seen: 4 years 11 months ago
Joined: 05/03/2015 - 16:13

Hi Simon 

I'm new to ouch as well anyway hello. Sorry to hear that you've suffering with ch I hope your bout ends soon. 

it will probably be worth mentioning to your gp about getting oxygen. It's a god send for some people, I find that it helps reduce the pain to a more manageable level other people it can stop them in the tracks and also has no side effects. I used the injections as well if it's a particularly bad attack. 

But I'd mention the O2 I find it helps loads 

welcome and good luck with this bout 


Tue, 24/03/2015 - 11:43
Last seen: 6 days 12 hours ago
Joined: 26/02/2014 - 14:26

Hi Simon and Shep,

Welcome to Ouch, sorry you both need to be here. Sumatriptan tablets do not work quick enough for CH in the Doctor prescribing bible the BNF (British National Formulary) it states the first line of abortive treatment is Sumatriptan injections and Oxygen. Amitryptiline is given for Migraine prevention and has no effect on CH. Please call the Helpline 01646 651979 for some great advice.

There is a wealth of info on this site please look around including the downloads section and info for sufferers 'New to CH'.

take care


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