Happy new year to everyone.
I was just wondering if there were any other people on here who have had any effects with lithium for SUNCT and CCH?
My neurologist has 'exhausted his options' now (his words ) and has referred me to see Dr Matharu in Queens square, though I'm not sure how long I'll have to wait for an appointment.
I had a bad reaction to zonisamide, went to the GP and was told to titrate down for 6 weeks, saw my neuro at hospital and was told to stop it immediately.
I have been titrating down off of topiramate and only have one week until that is stopped.
I started on 200mg lithium for 2 weeks and went up to 400mg a few days ago.
Pf wishes to all
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