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I'm back and so are they!

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#1 Mon, 10/03/2014 - 13:33
MelodyT
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Last seen: 5 years 8 months ago
Joined: 26/02/2014 - 15:05

I'm back and so are they!

Hello, I'm back... I've had 6 months off! But they're back!!

but some good stuff too, I did eventually last year get to see Nick Silver in Liverpool, he was fabulous and empathetic. He prescribed me Oxgen and sumatriptan injections.... At the time I had little oppotunity to test them, because my 18 month episode came to an end.

so whilst I'm not happy they're back, I am at least having an opportunity to try these treatment options now.

the Oxgen, I find a bit soothing, (and distracting) but can't say I'm finding that it aborts the pain and certainly doesn't stop one coming again within the hour.

whereas the injection, does seem to abort the pain after about  5 mins and I think stops others coming for a couple of hours at least.

ive taken to keeping a flask of ice beside my bed, as I find a very cold flannel on my head can soothe too. 

I am finding it more and more difficult with each episode to cope with the serverity of the pain and the exhaustion I feel afterwards, I don't know if this is just that I'm getting older and wearied by it all, or if the pain is actually increasing year on year.... What do others think?

Mon, 10/03/2014 - 17:34
Mr Git
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Last seen: 1 year 10 months ago
Joined: 26/02/2014 - 14:34

Hi Melody

Like you, I feel that it feels worse, but don't know whether that is because it is or whether I'm just battle weary and I've had enough of this now.  I guess it would be a tricky one for anyone to call, even the Prof.

Another option for the night time attacks:

I use Polar Powder cold compress packs.  I've invested in a mini cool box.  Every night I fill it with ice blocks and Polar Powder packs and they are still useable at 0030 hrs and 0330 hrs.  0530 - 0600 hrs normally involves a trip downstairs to the freezer, but that has its upside as my wonderful wife normally comes back with a mug of tea. :bigsmile:

I wish you all the best with your battle

Sean

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Mon, 10/03/2014 - 18:21 (Reply to #2)
MelodyT
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Last seen: 5 years 8 months ago
Joined: 26/02/2014 - 15:05

Thank you Sean, I'd never heard of that, but have just ordered one on line.

thanx

Mon, 10/03/2014 - 19:32 (Reply to #3)
Dorothy
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Joined: 19/02/2014 - 10:16

I used frozen peas for years but one day all I could find in the freezer was a bag of frozen mixed peppers.  I felt desperate, so I tied the bag on my head with a checked tea towel.  I went to bed and eventually, after a long while, I was able to fall asleep.  I awoke when my son came home, running up the stairs shouting for me.  I could hardly raise my head from the pillow but I groaned back "come in and look at your mother with melted mixed peppers on her head"  it was an amazing sight according to the look on his face.  There I was, wearing a checked tea towel on my head and with red, green and yellow juice running down my face...:Sp

Mon, 10/03/2014 - 21:47
Mr Git
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Last seen: 1 year 10 months ago
Joined: 26/02/2014 - 14:34

Thank God it wasn't a Tesco Lasagne Dorothy :O

May be next time try Chilli? :p:((

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Mon, 10/03/2014 - 22:25
Dorothy
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Joined: 19/02/2014 - 10:16

:bigsmile:

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