OUCH(UK) Organisation for the Understanding of Cluster Headache


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finally harry potter

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#1 Tue, 19/08/2014 - 23:52
Last seen: 1 year 3 months ago
Joined: 26/02/2014 - 14:34

finally harry potter

admits what we kind of knew,sorry for the lad but hopefully he willhelp promote our plight.


Wed, 20/08/2014 - 07:55
John S
Last seen: 5 months 2 weeks ago
Joined: 26/02/2014 - 14:41

We'll spotted, more publicity on its way.

listening to the Chris Tarrant breakfast show on Radio 2 this morning, Chris Tarrant has mentioned that Daniel Ratcliffe will be on his show on Friday morning and also mentioned DR taking blood  pressure tablets.





Wed, 20/08/2014 - 11:28 (Reply to #2)
Last seen: 2 years 9 months ago
Joined: 26/02/2014 - 14:55

Read article in yesterday's daily paper

Daniel said he was diagnosed  in 2012 after suffering severe "headaches"had to cancel several work commitment,

he quotes.i was in the middle of these weird things called"cluster headaches". It's very rare but exceptionally painful, it makes migraine look quite tame..

Dan reassures his fans don't worry I'm perfectly fine.


Wed, 20/08/2014 - 11:57
Last seen: 1 day 2 hours ago
Joined: 26/02/2014 - 17:02

I hope he joins the forum. We can absolutely bombard him with fanboy posts. :party:

Wed, 20/08/2014 - 15:19
Mike's picture
Last seen: 8 years 10 months ago
Joined: 21/03/2012 - 12:43

This has appeared two or three years ago and I was told by his management company that he was "cured" Of course he wasnt, just out of cycle. The Mail today has taken quotes from Migraine Trust on his treament,which is ridiculous. The clue is the name, its a cluster headache and the charity being quoted are not called  Cluster Headache Trust. Maybe we should start giving out advice on migraines.

Chairman OUCH UK

Sun, 24/08/2014 - 10:53
Last seen: 8 years 1 week ago
Joined: 22/07/2014 - 10:33

Just a heads up to Sunday Times Review section p7 

I'm a newbie and can see that they have mixed migraines and clusters within one article in a not ideal way. 

Mon, 25/08/2014 - 11:30
Last seen: 1 week 7 hours ago
Joined: 21/03/2012 - 15:16

The daily Mail article particularly annoyed me, as various members have been interviewed by them in the past, they know about OUCH and what do they do?  Ask the Migraine Trust?  I do wish that if MT are asked about CH by the media they tell them to contact us!  It is SOOOOO frustrating.

I'm also annoyed with the people around Daniel Radcliffe, they may be preventing him learning more about his disease and how best to treat it and denying him access to the best neuros in the world, by saying he is 'cured', when he quite obviously is not.  

I just hope he googles CH, sees our website and FB pages and learns a little more. 



Mon, 25/08/2014 - 13:56
Last seen: 1 day 2 hours ago
Joined: 26/02/2014 - 17:02

I'm sure he'll find OUCH the same way a lot of our members did;
out of desperation.
Although we may never know. It's likely he may wish to be anonymous, so, Daniel, if you read this, Billy Bongo is still available as a Forum name. (No one would ever guess)

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