finally harry potter
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#1 Tue, 19/08/2014 - 23:52
finally harry potter
admits what we kind of knew,sorry for the lad but hopefully he willhelp promote our plight.
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We'll spotted, more publicity on its way.
listening to the Chris Tarrant breakfast show on Radio 2 this morning, Chris Tarrant has mentioned that Daniel Ratcliffe will be on his show on Friday morning and also mentioned DR taking blood pressure tablets.
Read article in yesterday's daily paper
Daniel said he was diagnosed in 2012 after suffering severe "headaches"had to cancel several work commitment,
he quotes.i was in the middle of these weird things called"cluster headaches". It's very rare but exceptionally painful, it makes migraine look quite tame..
Dan reassures his fans don't worry I'm perfectly fine.
I hope he joins the forum. We can absolutely bombard him with fanboy posts. :party:
This has appeared two or three years ago and I was told by his management company that he was "cured" Of course he wasnt, just out of cycle. The Mail today has taken quotes from Migraine Trust on his treament,which is ridiculous. The clue is the name, its a cluster headache and the charity being quoted are not called Cluster Headache Trust. Maybe we should start giving out advice on migraines.
Chairman OUCH UK
Just a heads up to Sunday Times Review section p7
I'm a newbie and can see that they have mixed migraines and clusters within one article in a not ideal way.
The daily Mail article particularly annoyed me, as various members have been interviewed by them in the past, they know about OUCH and what do they do? Ask the Migraine Trust? I do wish that if MT are asked about CH by the media they tell them to contact us! It is SOOOOO frustrating.
I'm also annoyed with the people around Daniel Radcliffe, they may be preventing him learning more about his disease and how best to treat it and denying him access to the best neuros in the world, by saying he is 'cured', when he quite obviously is not.
I just hope he googles CH, sees our website and FB pages and learns a little more.
I'm sure he'll find OUCH the same way a lot of our members did;
out of desperation.
Although we may never know. It's likely he may wish to be anonymous, so, Daniel, if you read this, Billy Bongo is still available as a Forum name. (No one would ever guess)