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Cluster Headache Awareness Day 2019

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#1 Wed, 13/02/2019 - 14:16
Scott's picture
Last seen: 1 year 3 months ago
Joined: 13/11/2013 - 11:33

Cluster Headache Awareness Day 2019

Cluster Headache Awareness day is almost 4 years old!! 

21st March 2019.

So our Cluster Headache Partners across europe are combining to contibute to this imact study on cluster headache they are looking particularly for those that have been put out of work by cluster headache. 

Access the survey here. Please note this takes you to a site beyond OUCH(UK) and the sutdy is being managed by the CH Special Interest Group which is a sub group of the European Migrane and Headache Alliance which OUCH(UK) are  active members. 




Thu, 14/02/2019 - 20:46
DavidH 7
Last seen: 1 day 9 hours ago
Joined: 26/02/2014 - 15:13

I'd encourage all to complete the questionnaire rather than just those who are unable to work (From the questions asked, it seems they're exploring how CH affects lives rather than hoping to prove that people can't work.  Seeking out only people who are prevented from working would skew the results, surely?)

I'd absolutely support anyone who is prevented from working to get all the support they can (appropriate benefits and so on) - clearly, the condition makes it impossible for some to work ... but I'd also hate Cluster Headache to become known as an illness that always prevents work (I can work most days, albeit at sometimes at a lesser rate than usual, and this is really important to me and my well-being). 

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