hello everyone im mr flea just thought id say hi only just joined and looking forward to chatting with u all . a little bit about me.....ive had cch now for 10yrs i medicate this with verapamil/oxygen 15mlpm/lidocaine spray/ tramadol [when needed] but have had allsorts of stuff over the yrs like prednisolone/imigran injections ect ect none of these did anything ive just finished a course of topirimate and im glad i have as this stuff mashed me up real bad big time!! but did not help with my attacks it actually made them more frequent and made me forget things all the time i was dizzy and unbalanced and my head felt numb on one side[not the side i get my cch] so no good there! i get attacks daily from 1 in the morning up to 8 all through the day somedays are good some days are BAD!!!!!! i have a verry undrstanding fiance who i love verry mutch and would not be here if not for her i also have my family and friends who help out and keep my spirits up when i go to that dark place we all know.and try to remember folks never let the beast get the best of u its all about learning to live with and staying positive!!!! so there u go looking forward to chatting to u all and if i can help anyone out with anything im happy to do so cheers and bye for now PEACE.
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Welcome to the forum, Mr Flea
Arise and be all that you dreamed.
Hi, I'm Harriet (with no CH) but married to Pete (CCH 6 years). Really glad you have good support from family and fiancée, and now you have OUCH!
Although we have belonged to OUCH since the start of CH in our lives, until the last few months we were not using the forum. Now I am not working, so have more time and have been paying a lot of attention to the forum, so have more than just our own experience to go by now. Have benefited greatly from the OUCH helpline over the years.
CH is a crazy condition, you couldn't make it up!
hi chloe s hope all is good thanks for ur reply sometimes all u need is a hello to make u feel better so thanks and chat soon
hi harriet and pete thanks for ur reply means alot and i hope pete is coping well and ur correct u cant make it up ive had a lot of frustration with people over the yrs trying to explain how bad it is the trouble is its called a cluster head ache so people think its just a bad head ache but cant understand how excruciating and traumatic it is!!!! give my best to pete and tell him to take it easy and u aswell cheers hope to chat to u both soon.
hi mr flea, talkin of crazy hi, just try keep your chin up not easy i know, so glad you got your other halfs support vital, just remind her how much it means to you, i should have a load of leaflets( so much pain you want to die,) i will send you some for education of others if want? send me address in a pm, private message, also ouch on faceache you could find members near you for informal meet in your area, good for supporters too, chance to talk ask and support share tips and advice an a smile or two, im in the farnbrough area, all the best, dh