I've been a sufferer of ECH for approximately 7 years now. Had all sorts of grief getting a referral to a neurologist including being accused of taking steroids and being advised to 'just drink more water' by my gp.
Finally 4 years ago was referred and properly diagnosed and put on to amitriptyline 10mg x 1 per day, and sumatriptan 6mg injections. The amitriptyline doesn't seem to have any effect but the injections are a life saver.
Subject to an ECG tomorrow I am hoping to move over to verapamil. Interested in anyones views on amitriptyline vs verapamil?
Also for anyone who also gets the injections, what is considered a fair number to be prescribed in one prescription? I have just managed to get mine up to 4 but suffering with multiple CH per day these only last 2 days and regardless of if I go direct to gp or order online from pharmacy2u the turnaround for this repeat prescription is very slow and I'm left for days without medication. Anyone else experience this?
Thanks in advance
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