OUCH(UK) Organisation for the Understanding of Cluster Headache


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#1 Mon, 17/03/2014 - 13:17
Last seen: 9 years 7 months ago
Joined: 11/03/2014 - 15:43


Hi all nice to see the web site is back up and running. I am available for questions and queries about benefits employment and much much more.




Mon, 17/03/2014 - 19:39
CBailey's picture
Last seen: 6 years 7 months ago
Joined: 26/02/2014 - 15:13

Hi Gerry, 
I am receipt of both parts of PIP for chronic cluster headache and SUNA. I have found a job I would love to have (and feel I could do well), but is it better to go through Access to Work? And how would I go about that? Is it likely to lessen my chances of getting the job?
Thanks, Chloe

Arise and be all that you dreamed.

Tue, 25/03/2014 - 12:59 (Reply to #2)
Colin Allen Vic...
Last seen: 1 week 2 days ago
Joined: 21/03/2012 - 15:19

Hi Chloe,Gerry Tyrrell sends his apologies,he's having difficulty logging-on to the forum.We will rectify that asap.In the meantime he wants you to call him on 0151 2983288.

Colin Allen

Vice Chairman

Fri, 01/08/2014 - 11:41
Last seen: 9 years 10 months ago
Joined: 09/07/2014 - 12:39

Hi Gerry


after some guidance, been a CH sufferer for over ten years and my previous boss was very understanding, I am a business analyst so capable of working from home if needed. My old boss understood the CH and affects and if I needed to work from home was very understanding however, my new boss not so understanding, if your not fit to drive your not fit to work was what she stated to me. I live in Liverpool and work in Manchester so in a bout of clusters find it difficult to drive that sort of distance. I've got a letter from the hospital explaining the Clusters and how I manage the pain with injections and oxygen but sometimes it's not possible for me to drive and for my employee to have some consideration under these circumstances. What is the employment law for CH is it classed as a disability and what should I do with Human Resources as I feel I am getting unfairly treated as my new bosses opinion is that she doesn't like people working from home as she cannot see what they are doing and has no control over them yet she herself works from home and other members of my team when she chooses I feel I am being unjustly treated like she is trying to force me out of my job.




Thu, 30/10/2014 - 21:52 (Reply to #4)
Last seen: 8 years 8 months ago
Joined: 10/02/2013 - 12:57

Hi Steve,


Firstly, please accept my apologies for there having been no reply to your post in so long. We unfortunately lost the services of Gerry from Neurosupport. I'm however happy to announce that we now have an in-house advisor, Jason Clark, who will be happy to assist you.


Just in case you don't see this message, I will send you an email and include Jason in case you still have any questions about your employment issues.


All the best,


Sun, 23/11/2014 - 23:12 (Reply to #5)
Brian C
Last seen: 2 years 9 months ago
Joined: 26/02/2014 - 14:35

Get your union or HR to request a OCC Health report, and they will give you work advice regarding what they can do to help you, as you are classed as disabiled there is a diffrent processes they have to go through showing that they have done as much as the can to help you before they can go down the dismisal route, I was a teacher of design and manufacturing, and occ Health recomended several things that they could do to help, unfortunatly after several years I was medically retired and not fired, which they cannot do under Scottish Law, but I don't no about English law.

Hope this helps


JASON is my son


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