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off work since 27th January

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#1 Thu, 05/03/2015 - 11:26
kevwolf
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off work since 27th January

hi ive been off work since the 27th January,due to coming down with as the doctor said ch,its the first time and at whits end with it.

got to wait at least another 19 weeks before i get to see neuro doctor,

my doctor has just said that she thinks im in any fit state for work,and put me on the box for another month.

taking what seems an endless amount of tablets,injections and oxygen just to try and get through each day and night,forgot the last time i slept right.

work so far have been very understanding,but i don't know how much longer they will be...any advice

kind regards

kevin

Kevin Crook

Thu, 05/03/2015 - 12:32
ElmaA
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Joined: 26/02/2014 - 14:55

Hi Kevin ,

you are having a bad time sorry and taking a mixture of meds that don't seem to be of much help, hope the neuro at least helps, I know the feeling, I was in my early 50,s when my clusters started , but Dr treated me at that time SINUS,etc etc that went on for many years undiagnosed , a familiar story on this site,it was not easy finally was diagnosed about 8 years later, after a lot of different meds , none worked,except oxygen  and imigran,but like you and many members it is still hell on earth, I am now going on. 81 this year, in the middle of a bout at the moment , so just counting the weeks for it to end .....

been calling the nasty beast some very unladylike names this time to no avail , 

hope you get peace soon and pain goes away.

ELMA 

 

Thu, 05/03/2015 - 15:12
kevwolf
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hi Elma,

thank you,its just a complete nightmare,where i can't wake up from,because i just don't want to sleep.

i really don't know how folks can have such a condition for so many years yet hardly anyone knows about it,or how more importantly to those of us who suffer how to treat or even better cure it.

i hope your current bout doesn't give you too much pain,and i hope we both and everyone else who suffers get many pain free days to come.

i can't begin to say what names i screamed out.

Kev

Kevin Crook

Thu, 05/03/2015 - 17:09 (Reply to #3)
John
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Joined: 07/04/2014 - 15:08

Kevin

Just make sure that you keep in touch with work and explain your condition.

When the term headache is used some people can't understand why you can't work through it.

Introduce them to OUCH and the nasty world or Cluster Headaches.

All the best.

John

 

 

 

Thu, 05/03/2015 - 17:51
Harrietjt
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Joined: 22/10/2014 - 12:47

Hi Kevin,

Sorry to hear what you are going through. Our experience (husband CCH for 6 years having had one 6 week episode the year before) is that it can be very difficult to get people to understand that something that is called 'headache' can devastate your life and ability to function. Glad to hear your work are understanding so far.

To try to give people the picture we talk about how many Attacks he is having, rather than how many Headaches, and also explain a bit about the treatments and recommend the OUCH UK website info and vidoes. If you google 'Cluster Headache Chuck' you get a short YouTube video of a guy having an attack that I sometimes show people cos for us it shows what my husband suffers. That tends to make people take the beast seriously, they start backing away saying how awful! 

I think you need to stay in close touch with the guys at OUCH cos they are experts in all the various situations and difficulties you might come across and will support and guide you as they happen, including if your work situation gets tricky.

Is the neuro you are going to actually a headache expert do you know?

Harriet

 

 

 

 

Fri, 06/03/2015 - 08:22
kevwolf
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Joined: 23/02/2015 - 21:36

hi all,

thanks for kind comments they really do help at the momment,i've been in constant touch with the pr at work.

they are sending someone from occuptional health,to assess me.

hopefully now being reffered to Julie Edwards @city hospital,Birmingham and a consultant there,don't know name,just praying that i haven't got to wait 4 months to see them,like my own hospital @new cross,Wolverhampton.

They said it would be an urgent appointment,so fingers crossed,meantime i just want this cycle to end,as it's first time just don't know when that will be.

Kev

Kevin Crook

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