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OUCH(UK) Organisation for the Understanding of Cluster Headache

verapimil causing headache

4 posts / 0 new
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#1 Wed, 09/08/2017 - 12:31
malcolmmole
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Last seen: 2 months 3 days ago
Joined: 26/04/2017 - 16:26

verapimil causing headache

I really hoped verapimil would be wonderful..... BUT.....

I weaned off propanolol and had 3 weeks clear then started verapimil...... the consultant decided I would start on 1 40mg per day then next week 2 per day then next week 3 per day..... then I would have 80mg in morning and 40mg afternoon and evening... and so on to "at least" 240mg doses.

week 1 was great, week 2 better but week 3 (1 x 40mg 3 times/ day) caused a "background migraine".. slightly more than my "norm" equating to permanent "hangover" 24/ 7.... day 2 and it got worse... day 3 worse.. day 3 night and I was awake all night in growing pain... day 4 and its approaching a cluster level pain but across head from ear to ear and hairline to "crown"..... plus distinct cluster every few hours.

Anyone else had this "growing migraine" reaction?... if they have, I suspect it would have been at greater dosages.

Meant to have ECG every week but the surgery makes me very bad and it was ridiculous to have 4 or 5 days immobilising migraine and only a couple of days clear...... so I made conscious decision not to have them done.... I hope its not a fatal mistake

 

malcolm

malcolmmole

Fri, 11/08/2017 - 13:01
Val
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Last seen: 1 week 5 days ago
Joined: 21/03/2012 - 15:16

Malcolm,

 

Verapamil has to be at a higher dosage level than you have started.  You need an ECG before starting and one very fortnight before increasing the dosage.  I will send you the suggested regime from the Institute of Neurology by private message.   The starting level is 240 mgs [80mgs 3 times a day] and the ceiling dose for CH is 960mgs a day.  It would seem if you are getting such a reaction at low dose levels that verapamil may not be suitable for you.  Was it your GP or your headache neuro that started you on verapamil,  NB please note that you should not change your medication in any way without the guidance and instruction of a qualified health professional.

 

Val.

Fri, 11/08/2017 - 13:14
Val
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Last seen: 1 week 5 days ago
Joined: 21/03/2012 - 15:16

Amendment to above post:  the start does for verapamil is 120mg twice a day.  Brain fog!!!!

Sat, 12/08/2017 - 09:18
ElizabethK
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Last seen: 1 hour 3 min ago
Joined: 26/02/2014 - 14:26

Malcolm,

When I was tried on Verapamil some years ago it made my Migraine very much worse, and proved very quickly that it was not suitable for me!  It may be that you have an underlying Migraine condition which needs to be discussed with your Neuro!  As Val has said, you must only reduce or come off it under medical supervision!

take care

Liz

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