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Treatment for Shadows?

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#1 Fri, 03/12/2021 - 10:07
AndreS
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Last seen: 5 months 1 week ago
Joined: 26/02/2014 - 15:14

Treatment for Shadows?

Hi All,

I'm actually in quite a lucky position, my last episode is nearly 5 years ago, and for that I'm very grateful. However, I have shadows since nearly 1.5 years now (= a lot of the sensations which I would feel just before headaches start, like the typical pressure in that region of the face, getting a little restless/agitated, etc, but no pain at all). The shadows are sometimes so intense that, if I would be in an episode / CH bout, I would take medication because the onset of the pain would be so imminent.

While I have no pain, the shadows still wear me down. I think with every more intense shadow-'attack' my body goes automatically into a panic mode or fight-or-flight response, because it still expects the onset of the excruciating pain any minute now. I'm generally not too well since a while now (physically and mentally), and the shadows make my overall situation just more difficult.

Thus, I was wondering whether people have experience with things which might help to get rid of the shadows?

Best wishes,

Andre

Edit: For the proper treatment of the pain (when I'm in an episode), I couldn't take the standard preventative medications. Instead, I used acute treatments (nasal spray and injections), sometimes combined with Naratriptan tablets (4 spread over the day). GammaCore sometimes helped and sometimes not.

Mon, 31/01/2022 - 12:25
doc.deano
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Last seen: 4 months 1 week ago
Joined: 20/11/2017 - 20:02

Hi Andre

Many find oxygen to works well for shadows but in my case it does nothing. However oxygen often stops a full blown attack for me. Instead I find one 100mg tablet of sumatriptan works but takes nearly 2 hours to do so. I sometimes wonder if the shadow would have gone away without treatment but with "experimentation" I think it is the sumatriptan. If shadows are occuring alongside attacks maximum daily drug doses are more likely to be reached (assuming you abort with a triptan) or even  breached. Side effects remain uncommon BUT you have a risk of rebound (or tachyphylaxis - big word - but more drug needed for same effect until hardly works) or medication overuse headache (more common than we think and probably can happen with triptans - best Google that!). However my shadows appear at the end of a cluster when the attacks have stopped so sumatriptan is all I will be taking and rarely need more than 100mg in 24 hours. Good luck. Dean (Retired Doctor but not a headache specialist).

Fri, 17/06/2022 - 18:54 (Reply to #2)
Harley 6247
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Last seen: 2 weeks 3 days ago
Joined: 10/06/2022 - 11:19

Hi my name is Bob and I was diagnosed with episodes CH five years ago and am having a bout.  Apart from the cluster attacks I am also having a deep pain above the eye in between which are still painful.  What medication can I take for these.

Robert Smith

 

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