TORYN TUCKER CH VIDEO

This video is excellent and yer helps explain the condition well, but I feel the term ” suicide headache” to be very Dangerous and foolish. I myself suffer from CH and yer it fair to say at points during an attack I know exactly why this term exists, I know this is not the intention but calling the condition “suicide headache” to me almost makes it sound like it leads to that at some point. (Possibly encourageing some suffers to take this corse of action if not well informed)

Brilliant video. Maybe one day sumone important in society might get them and we get more funding to help us

Hi

I’m a new member. i have episodic cluster headache diagnosed last year after 20 years of “migraine” that didn’t respond to any medications-

The video actually made me feel sad that I’ve had this terrible pain but couldn’t access the right treatment. I always feel I’m being melodramatic calling them suicide headaches but it’s soo hard explaining to others what they are like. .

The lady in the video mentioned memory problems and I wondered what others had experienced re this. It’s a running joke that my long term memory is appalling- I once had to ask my husband whether or not I’d been to Australia!!!!

also I’ve never heard the term shadow headache but I definitely get them. 

Thanks 

Yes I also have got a terrible memory (it’s got worse as I got older an had more bouts of ch) i think it also a side effect of ch

Simon, did you get my reply to your message?

Dorothy

No Dorothy I never. I sent you a rather long personal msg I never thought you got it as it never showed on my sent msg,s.  I hope you did and that’s the one you replied to, but no I not received it,, thanks 

Simon, please email me on dorothy@ouchuk.org