I have had ECH since around 1990 but was only diagnosed when I was 30 in 2005. I get bouts once every 18 months and they last for six weeks and my headaches last around 4 hours and the pain feels like I'm being cracked over the temple with a scaffolding pole but where the pain at the point of impact lasts for those 4 hours. I get them every day or twice a day during the middle of the six week bout. This is a well established pattern. I avoid sexual activity, milk, gluten and alcohol during the six weeks. I am not sure if the milk and gluten have any effect but I know the other two definitely do.
For people with similar patterns does anybody relate to the need to stop taking sumatriptan injections for one attack out of three or four and just sit through a headache? Or am I being unnecessarily masochistic? I don't have access to high flow oxygen and am in the middle of a bout now. I just want to know whether, besides the maximum dose, whether there is any reason to not take an injection when an attack comes.
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