OUCH(UK) Organisation for the Understanding of Cluster Headache

Donate

Advice Line

0800 6696 824

overseas +44 1646 651 979

Sumatriptan

3 posts / 0 new
Last post
#1 Sun, 11/07/2021 - 17:59
Millydog12
Offline
Last seen: 2 weeks 1 day ago
Joined: 18/06/2020 - 12:40

Sumatriptan

I was diagnosed with CH by a neurologist last year.  I have oxygen but it doesn't seem to be as effective as sumatriptan. However, my GP only gives me 6 tablets per month on repeat prescription.   Is this normal?  I understand the medication is expensive.  I am having at least two bouts of headaches a day and have done so since May, so require more.  Any advice gratefully received.

Sun, 11/07/2021 - 21:35
DavidH 7
Offline
Last seen: 2 days 5 hours ago
Joined: 26/02/2014 - 15:13

Hello. 

With my always important disclaimer that I'm not a GP  or similar ... that doesn't seem okay to me, on a number of levels.

I'd go back to your neurologist, perhaps after speaking to someone at OUCH.

Sumatriptan is more effective as an injection (generally, at the maximum of two per day) - tablets just take too long to work.  Assuming no underlying health issues, it doesn't seem unreasonable to request this.

Off the top of my head (not a GP etc ... ), you could plausibly take four tablets per day, relatively safely.  I had a few years after diagnosis where I was taking tablets rather than injections and I thought they were amazing ... but, then, I was also often crying myself to sleep in pain. 

 

 

Mon, 12/07/2021 - 09:36 (Reply to #2)
Millydog12
Offline
Last seen: 2 weeks 1 day ago
Joined: 18/06/2020 - 12:40

Thank you.  I am hoping to pick up some Sumatriptan injections today but my GP has only given me 10.  I will go back to my neurologist.

Login to add comments

Share This

© OUCH(uk) 2021 | email: info@ouchuk.org
Registered Charity No. 1091919 | Registered in England Company No. 04339368