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OUCH(UK) Organisation for the Understanding of Cluster Headache

Shadows

4 posts / 0 new
Last post
#1 Fri, 17/04/2015 - 22:14
DavidH 7
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Last seen: 3 weeks 5 hours ago
Joined: 26/02/2014 - 15:13

Shadows

I experience Cluster Headaches every other year.  My last bout was in late-March/April 2014.  Inbetween, I experience "shadows" and this year they have seemed quite pronounced.  More or less to the week of my last episode I've experienced (relatively) mild pain in the same place as my usual Cluster Headaches but at a level I'd suggest was "3/10" instead of "9/10" - annoying rather than agony.  I wonder how others treat their shadows?  Do you use your usual medication or does the pain seem so slight in comparison that you go without?  Is there a recommended course of treatment?

Sat, 18/04/2015 - 09:38
duetto
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Last seen: 1 year 5 months ago
Joined: 26/02/2014 - 14:54

I just have to ride them out but they can last ages, sometimes a strong black coffee or hot chilli/mustard dish can help snap out of them but only abut 25% sucess rate with me.

brusing teeth with an electric toothbrush strangly helps sometimes too. As does answering a phone call or a stressful event you have to deal with, trouble is when you calm down a cluster hits.

Mon, 20/11/2017 - 22:07
DavidH 7
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Last seen: 3 weeks 5 hours ago
Joined: 26/02/2014 - 15:13

Hmm.  I've had neck/shoulder pain with has progressed to a kind of "near-migraine".  I'd have said this wasn't related to my Cluster Headaches (I'm not due them) but I've been getting very mild pain in the same place as when I have Cluster pain ...

Thu, 30/11/2017 - 13:07
JosephK
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Last seen: 4 days 12 hours ago
Joined: 26/02/2014 - 14:04

As somebody for whom shadows have become the norm over the past 15 - 20 years, I've always ridden them out.  Caffeine can help.  Exercise can help or make them worse.  I have bouts of shadows.  They often improve if I take a break from work when I have them.

The question of "what shadows are" was raised at the recent headache meeting at KC in London.  I was thinking about writing my own description of shadows to submit to the headache team to see how it compares with other sufferers.  The terms is so frequently used but they admit to knowing very little about what they actually are.  I guess if you don't have them yourself, how can you imagine them.

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