My (adult) daughter is a chronic sufferer and extremely worn down at the moment (unsurprisingly).
I'm very concerned that she is on SSRI's and how they are interacting with the large amount of sumatriptan she either has to spray or inject. She is not specifically monitored by her GP (she goes in every few months to get a repeat of her SSRI's and gets repeats of injections etc on request) and frequently suffers extreme nausea, confusion, slight tremors, problems with co-ordination and stomach issues. Some of this subsided when she self-reduced her dose of SSRI earlier in the year, but when she has especially bad CH's that don't go away with oxygen and has to use 'triptans, these other symptoms all reoccur until she becomes very ill even without a CH. She's at home at the moment so we can look after her.
She is waiting for an appt to see the team at King's so I'm hoping this is the kind of thing they will have experience with but wondered if anyone had advice in the meantime?
My other question was for anyone that had seen the specialist - is it useful to have a diary of symptoms etc to take up there? Any other tips to make the most of the appt?