Request for Info

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Conradio63

Joined: Tue, 04/23/2024 - 21:26

Last seen: 2 years 3 months

Submitted by Conradio63 on

My neurologist has asked me to spend some time with her to prepare and participate in a presentation that she intends to deliver to GP's with a view to educating them on everything cluster headache....

Her father is a cluster sufferer and she is very fluent in our suituation.

I know OUCH did a mailer that had details and info..... would it be possibe to get a hold of that in pdf, also any other relevant info that should be included.

I intend to start it with some of the arte cluster images as they have great impact and are a great starting point to highlight the difficulty that we face.

I also intend to point out the issues we face with socialability, holding down jobs, keeping it secret and in my own case how it left me pretty much a recluse.... generally not part of any medical prognosis but almost had me.......

If this proves to be any way successful than I will be happy to make it available.

Conrad

 

 

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Val

Joined: Wed, 04/15/2026 - 17:47

Last seen: 3 months 3 weeks

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Hi Conrad

Not ignoring you, but I have to seek permission of the trustees as the info in the booklet is copyrighted to OUCH.  I will get back to you as soon as I can.

Val, Administrator.

 

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