My neurologist has asked me to spend some time with her to prepare and participate in a presentation that she intends to deliver to GP's with a view to educating them on everything cluster headache....
Her father is a cluster sufferer and she is very fluent in our suituation.
I know OUCH did a mailer that had details and info..... would it be possibe to get a hold of that in pdf, also any other relevant info that should be included.
I intend to start it with some of the arte cluster images as they have great impact and are a great starting point to highlight the difficulty that we face.
I also intend to point out the issues we face with socialability, holding down jobs, keeping it secret and in my own case how it left me pretty much a recluse.... generally not part of any medical prognosis but almost had me.......
If this proves to be any way successful than I will be happy to make it available.
Conrad




Joined: Wed, 04/15/2026 - 17:47
Last seen: 3 months 3 weeks
Send Email
Submitted by Val on Thu, 05/19/2016 - 11:39
PermalinkHi Conrad
Hi Conrad
Not ignoring you, but I have to seek permission of the trustees as the info in the booklet is copyrighted to OUCH. I will get back to you as soon as I can.
Val, Administrator.