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#1 Wed, 18/05/2016 - 21:24
Conradio63
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Last seen: 2 years 4 months ago
Joined: 27/01/2016 - 16:11

Request for Info

My neurologist has asked me to spend some time with her to prepare and participate in a presentation that she intends to deliver to GP's with a view to educating them on everything cluster headache....

Her father is a cluster sufferer and she is very fluent in our suituation.

I know OUCH did a mailer that had details and info..... would it be possibe to get a hold of that in pdf, also any other relevant info that should be included.

I intend to start it with some of the arte cluster images as they have great impact and are a great starting point to highlight the difficulty that we face.

I also intend to point out the issues we face with socialability, holding down jobs, keeping it secret and in my own case how it left me pretty much a recluse.... generally not part of any medical prognosis but almost had me.......

If this proves to be any way successful than I will be happy to make it available.

Conrad

 

 

Thu, 19/05/2016 - 11:39
Val
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Last seen: 4 days 22 hours ago
Joined: 21/03/2012 - 15:16

Hi Conrad

Not ignoring you, but I have to seek permission of the trustees as the info in the booklet is copyrighted to OUCH.  I will get back to you as soon as I can.

Val, Administrator.

 

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