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OUCH(UK) Organisation for the Understanding of Cluster Headache

Qualitative Survey by our Clusterbuster colleagues

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#1 Sat, 11/02/2017 - 21:05
Scott
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Joined: 13/11/2013 - 11:33

Qualitative Survey by our Clusterbuster colleagues

We have been asked by our colleagues from Clusterbusters to take part in this worldwide survey on cluster headache sufferers.

We have recently and tragically lost another young cluster headache sufferer to suicide.
We need to continue to do what we can to inform society that people suffering from clusters face a long and frustratingly difficult struggle against the psychological burden that this condition places upon us.
Dr. Larry Schor, a cluster sufferer himself and a long time advocate for the entire community is currently recruiting people for a study that will highlight these burdens and will serve to help us inform the public and the medical field of the situation and our desperate need for help.
Despite numerous descriptions in the literature suggesting Cluster Headache is among the most painful medical conditions, it has been difficult to measure and describe with precision the severity of the pain that occurs during an attack.
Our study focuses on the following questions:
Severity of pain
Prevalence, severity, risk factors, and protective factors of suicide
Personal burden (impact on relationships, work, and daily living)
Effectiveness of treatment as well as obstacles
Psychological impact

To access our survey please visit the following link: www.clusterheadache.center

This survey has already attracted enough participation that it will be the largest study of it's kind in history. The results will be widely published and used to advertise the need for immediate research and the seriousness of the condition. Please add your voice to this study if you haven't already.

 

 

Thu, 23/02/2017 - 06:32
zanycheff
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Joined: 26/02/2014 - 14:35

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