OUCH(UK) Organisation for the Understanding of Cluster Headache


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new member/ also feeling low at the minute.

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#1 Fri, 20/06/2014 - 12:57
Last seen: 9 years 6 months ago
Joined: 19/06/2014 - 09:36

new member/ also feeling low at the minute.

Hello all,

Just a small post to say high to everyone here, new to the site and using it to look at some of the topics on medication etc. i was diagnosed with CH june last year but it started in Jan. Was told it was CCH this year, Am on verapamil @ 960mg daily and 800mg lithium daily also have O2 cyclinders an sumitriptan injections. Finding it hard as i have lot job becase of this and find it hard to explain situation to people. would like to know if anyone on here is in the same situation and also if any members are close to sheppey as would like to talk to people without having to explain ourselfs.


Fri, 20/06/2014 - 17:29
Last seen: 2 years 11 months ago
Joined: 26/02/2014 - 14:55

Hello Jason ,

A very warm welcome .

sorry that you are feeling low right now , we all understand how that feels and I know it is very hard trying to explain how you are when in bout . The fear of it starting up again , the terrible pain when it starts how it gets you so down.

Been a sufferer more years than I care to remember I didn't even know what C/H was when I was finally diagnosed then I found ouch.

The knowledge, "The Understanding"that's  the great part and the feeling you are not alone helps such a lot and they are just a phone call away when you need help. So Jason keep posting and reading.

take care .


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