I am new to this whole writting in forum things but I have been reading them since my diagnosis and they have been really helpful! But I just wanted to ask a few questions and share my experience to see if anyone has had similar issues and if they found any treatments that work.
So I'm 20 years old and had my first attack at 16, I was told for 2 years I was being dramatic and was just trying to avoid school but after two years I got diagnosed with cluster headaches and chronic migraines. I have been on all forms of subtriptiman (injection, nasal spray etc..) but they didn't really help and made me feel incredibly unwell. I have also been on verapamil, steroids and troprimate but none have helped. The only thing that has work has been my oxygen therapy but recently even that hasn't worked to manage the pain and I've been admitted to hospital. I have been told that they want to try treating me with lithium and wondered has anyone been on it before? Are the side effects bad? Or they want me to use the electronic device but I have to wait for referals which take forever.
My final question is just about anyone who is unable to work with these headaches and what route did you go down as my clusters are becoming so frequent I'm struggling to attend my job. Thank you for any help you guys have
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