OUCH(UK) Organisation for the Understanding of Cluster Headache

Donate

Advice Line

0800 6696 824

overseas +44 1646 651 979

Light therapy ? Anyone tried it any advice?

3 posts / 0 new
Last post
#1 Thu, 15/05/2014 - 11:28
Wiggs
Offline
Last seen: 4 years 11 months ago
Joined: 26/02/2014 - 15:13

Light therapy ? Anyone tried it any advice?

Hi

not been on this new forum and still getting used to it !!  My son Wiggs (now 12) has Chronic PH which looks like  continuous headache with CH attacks on top.    Indo is very effective.  As the years go on you start to see patterns

One thing that stands out is how much better he is in the summer compared to the winter.  In the summer the background headaches are low level with lower level attacks, winter gives a background headaches so bad that even thinking is hard,  on top of that severe attacks.

Wiggs finds getting to sleep tricky, this is far more pronounced in the winter, January / February we resorted to Circadin (melatonin) on school nights.  It is very striking now, in Spring, that whilst he still finds it hard we don't need meds.

For life to be liveable he is completely dependent on Indometacin,  with headaches coming back within an hour of the next dose being due.

Yet this week on sunny Saturday he legged it out the door yelling over the noise of the wheels of his cricket bag ....."don't need my tablets - I'm outside all day and it's sunny."  And he was right, he was fine until the evening.  Yet in the winter he even wakes up with a headache, despite the Indo.

So my question is has Wiggs hit the nail on the head?  Is it more sunshine?

Has anyone tried light therapy?????

or more desperately has anyone tried moving abroad?  

I've looked up light therapy on the internet and not much specific to CH/PH.   Any suggestions or experience on the very confusing world of light therapy would be appreciated.

thanks

catherine

Thu, 15/05/2014 - 17:18
duetto
Offline
Last seen: 4 years 2 months ago
Joined: 26/02/2014 - 14:54

on holiday in hot climates I too feel a lot better, background headaches go but still get clusters but a lot less painful

Thu, 15/05/2014 - 22:51
Val
Offline
Last seen: 5 hours 27 min ago
Joined: 21/03/2012 - 15:16

Hi Catherine

I have replied to you on another thread and sent you a PM.  I know one sufferer who tried one of those light therapy machines, but it didn't work - it seems that you can't fool the brain into thinking it's summer when its not - something to do with the intensity of the light and the fact that when the lamp is switched off its pitch black, it doesn't go gently off like the sunset.  I'll ask her.

Val. :)

Login to add comments

Share This

© OUCH(uk) 2020 | email: info@ouchuk.org
Registered Charity No. 1091919 | Registered in England Company No. 04339368