OUCH(UK) Organisation for the Understanding of Cluster Headache


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Identifying symptoms

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#1 Wed, 05/08/2020 - 22:56
Last seen: 1 year 7 months ago
Joined: 19/05/2020 - 21:41

Identifying symptoms

Hi all.

Having had CHs for almost 9 years, this current bout has brought new symptoms. Thanks to this site, I have seen that all are experienced by others. But, I have developed pain in my left shoulder and a weakness in my left knee, considering the CH always attacks my left side, I wanted to ask if anyone had experienced this? Or am I just knackered lol...


Mon, 30/11/2020 - 12:18
Last seen: 1 month 1 week ago
Joined: 01/12/2019 - 20:14

Hi JonGee

I get the shoulder pain too - it is on the top and around the shoulder blade. I also get arm pain. All linked ot the same side as my headaches. Not my knee though!

Advice I have been given is that this pain could be caused by tension following the CH.

Thu, 10/12/2020 - 13:15
Last seen: 2 years 9 months ago
Joined: 10/12/2020 - 12:29

I have experienced whole left sided pain, shoulder all the way down to my feet and was noticed by my neurologist weakness in my entire left side (same side as ch attack) it's that bad I have been put on 1000mg of naproxen even though it does not help much.

Michael Gibson

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