OUCH(UK) Organisation for the Understanding of Cluster Headache


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#1 Mon, 15/12/2014 - 21:00
Last seen: 5 years 6 months ago
Joined: 04/10/2014 - 20:34


Today I had my appointment at the hospital to see my neurologist, I have waited a year, although I have had cronic clusters for 10 years, i only get appointments once a year... after an hour journey, i was in there for exactly 3.5 minutes, she told me my oxygen was not helping and I have to come off my injections within 6 months.... Do these doctours not understand that these injections are the only thing that takes away the pain, and as I have upto 7 attacks a day I am now left with no hope that I will have one day without pain, without the medication that helps or the support of the medical staff that are surposed to be there for me

Mon, 15/12/2014 - 23:47
Last seen: 1 day 6 hours ago
Joined: 26/02/2014 - 14:26

Jane, please see your other thread!

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