OUCH(UK) Organisation for the Understanding of Cluster Headache


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Hello just joined

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#1 Fri, 02/01/2015 - 06:11
Last seen: 6 years 1 month ago
Joined: 02/01/2015 - 05:37

Hello just joined


Just rejoined after a few years away. I was diagnosed with chronic refractory migraines several years ago and OUCH was kind enough to help me through that and many of the treatment processes.

My condition has worsened lately and my neuro is currently investigating. The possibility of additional headache disorders such as CH etc.

It's s slow process and I feel between a rock and a hard place at the moment. Imigran jabs help a great deal but I'm limited to 4-5 packs a month, which I am trying to sort out, having recently moved and changed GP's is making it more complicated too.

Probably like most of you I could do with some decent sleep too and find this time of year particularly hard to cope with, as my attacks worsen and become more frequent.



Mon, 05/01/2015 - 10:12
Last seen: 5 days 8 hours ago
Joined: 21/03/2012 - 15:16

Hello Jane

Welcome back!  Although I wish circumstances were better for you.  One thing your GP might prescribe to give you a decent night's sleep is taking a sumatriptan tablet before going to bed.  This strategy has worked for many sufferers, but you do have to include it in the daily triptan count.  Another drug that works well to give a CH sufferer some much needed sleep is a drug called melatonin [see the treatments section of the website], and to give you some painfree time day and night a short course of high dose steroids can work.

Hope this helps

Val. ;)

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