OUCH(UK) Organisation for the Understanding of Cluster Headache


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#1 Sun, 17/05/2015 - 19:40
Last seen: 4 years 3 months ago
Joined: 12/05/2015 - 11:34


Hi all, I'm new to this site but not to CH.

i am ex military, then IT and now working as a operations manager in a children's home.

after reading through other people's CH attacks I feel very very lucky.

i was first thankfully correctly diagnosed as having CH in 2005/6 and got the correct treatment, melts during day and injections for attacks, this lasted a few moths and cleared up, woot great.

now after being misdiagnosed as having sinusitis I had a level 10 attack, a&e majors and the consultant diagnosed CH, but the trouble with A&e they have to refer you back to yourGP to get treatment which I find ridiculous, saw GP and luckily my old nerologist notes were on file and gave the GP all the details needed, so I got the correct meds again, but melts don't work as good as before.

this time though my major attacks come on with minutes whereas before it was gradual.

im at present in St Lucia on holiday then to las vagas fit a wedding, had to go tea total due to triggers and been having a nightmare out here during the night really.

i must say had an attack on plane and virgin were great, got oxygen and cleared it woot.

I wondering if the aircon is bringing on ch attacks more?

well it's good to be among friends and I will hopefully attend Liverpool.



Sun, 17/05/2015 - 20:29
Last seen: 1 month 5 days ago
Joined: 26/02/2014 - 14:26

Hi Tim,

Welcome to OUCH. Usually the melts do not work for CH as they take too long to get into the system. The first line of abortive treatment is injections and oxygen, don't forget you cannot use more than two triptans in 24 hours. It would be great if you could come to the Liverpool Conference you will learn so much and of course there is nothing like meeting a fellow sufferer!

take care


Mon, 01/06/2015 - 15:26
Mr Flea Mr flea
Last seen: 4 years 2 months ago
Joined: 08/04/2015 - 21:52

Hi Timmytoo nice to have you aboard and welcom im quite new to this site aswell but been suffering chronic clusters for a good ten yrs now sounds to me you need oxygen therapy 15ml pm this helps me a lot and i think it will for you. Go to your GP and demand it dont take no for an answer!!!!!! anyways hope your doing ok and no worries take it easy and chat to you soon:)

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