OUCH(UK) Organisation for the Understanding of Cluster Headache


Advice Line

0800 6696 824

Getting Oxygen

4 posts / 0 new
Last post
#1 Thu, 11/06/2015 - 17:50
Last seen: 4 years 10 months ago
Joined: 12/05/2015 - 11:34

Getting Oxygen

Hi all

having a nightmare getting some oxygen.

GP says the neurologist needs to do it, so saw one and they say they can't do it as it must be the GP any one else had this.

he also said because I smoke I might not be able to have it? Anyone else had this?

when I was in St Lucia I managed to get a 2000L bottle which worked very well for me, so I know it's worth having.



Thu, 11/06/2015 - 21:27
Last seen: 7 years 11 months ago
Joined: 26/02/2014 - 14:54

remember in the worst case scenario ring 999 an ambulance will attend and provide oxygen till your cluster clears, [remind them non rebreathable mask and flow 15, & use for ten mins after cluster goes] they will not need to cart you off to hosp just traet you at the scene.

I used it once a while back, the ambulance crew said they dealt with people with cluster attacks before and caught short with no oxygen.

Fri, 12/06/2015 - 06:00 (Reply to #2)
darren h
darren h's picture
Last seen: 5 years 8 months ago
Joined: 20/03/2015 - 11:43

hi tim, the doc can and should by nice guidlines its the code thay should follow! thres posts here some where, did you say ur ex army? im ex pow. if you still got that sence of houmor send me your email address and i send you a copy of the email my docs gettin, im sure it would help you,:bigsmile: all the best dh

Sat, 13/06/2015 - 22:02
Last seen: 1 day 19 hours ago
Joined: 26/02/2014 - 14:26

Hi Tim,

GP's can sort out the Oxygen for you unless you live in Scotland when it is the Neuro only that can get you oxygen. We have a clinically correct partly filled out HOOF (Home Oxygen Order Form) on this website in the downloads section that you could take to your GP and all he will have to do is fill out your name and address and his.

All the best with this Tim


Login to add comments

Share This

© OUCH(uk) 2024 | email: info@ouchuk.org
Registered Charity No. 1091919 | Registered in England Company No. 04339368