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GammaCore Device & a few other questions from a re-joined member

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#1 Fri, 08/03/2024 - 17:20
PETE_CHAMELEON
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Joined: 08/03/2024 - 16:28

GammaCore Device & a few other questions from a re-joined member

Hi my name is Pete and I've been a clusterheadache sufferer for near on 40years. I used to be a member on here years ago but have now rejoined. I was an episodic sufferer (2-3 months of the year) but since 2019 they have become chronic (2-4 times daily but less severe). I use Imigran 20mg nasal sprays and Oxygen - it works best for me. 2 questions really:

Gammacore device - my neurologist referred me to get this and I started using it for 2 days and my cluster attacks seem to have got more frequent and more severe. For now I stopped using the device. Anyone experienced the same? Any advice from users of gammacore?

I read somewhere that GammaCore device usage cost up to £400 a month but I haven't had to pay? Will I have to pay? I know there is a 'top up' card. I got this via NHS neurologist referral.

Any advice / experiences for sufferers like me who have gone from episodic to chronic cluster headaches?

thanks

Pete

 

Thu, 14/03/2024 - 17:09
Dorothy Trustee
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Joined: 19/02/2014 - 10:16

Hi Pete

Welcome back!

I'm sorry to hear you went from being episodic to chronic. You could give our advice line a call on 0800 6696824 and have a chat. Leave your details and they'll ring you back. 

All the best.

 

 

 

 

 

Dorothy (Trustee)

Mon, 18/03/2024 - 16:55
DSW
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Joined: 11/01/2022 - 14:52

Hi Pete

I am an episodic sufferer and was prescribed the Gammacore device three years ago, by my neurologist, Dr Silver (2023 speaker at OUCH conference) When I'm within a bout of attacks I use it three times a day, morning, noon and night together with oxygen as a preventative measure, it's certainly seems to help considerably. I was having attacks daily the worst lasting for seven hours whereas now the pain is ever present but mild. The top-up card lasts for 93 days and I request a further card, when needed, via the neurologist and it arrives in the post with the gel. Since using the Gammacore I have not needed to ask for 'nerve block' injections.

I hope this is of help, all the best - Dave 

DSW

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