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Gammacore

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#1 Wed, 25/09/2019 - 10:06
TanAhmed
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Last seen: 3 weeks 1 day ago
Joined: 24/09/2019 - 11:41

Gammacore

Hi 

 

I am an ECH sufferer and have been for over 40 years. I manage the condition reasonably well using imigran injections and oxygen. I have started a new cycle of headaches and rejoined OUCH. I can see since my last episode (4 years ago) there is a new treatment, called GAMMACORE; and I want to try this as an addition to my meds

How do I access this device etc?? Presumably it is via my neurologist; I have just asked my GP to be referred to Dr Silver at Walton in Liverpool, however this will take time unfortunately. Does anyone know of a private nerologist I can pay and see that will discuss with me how to use Gammacore? I will travel to any part of the UK but I do live near Manchester, in Wilmslow.

Tan Ahmed

 

Wed, 02/10/2019 - 08:59
adrianabbott26@...
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Last seen: 2 weeks 1 day ago
Joined: 03/03/2014 - 13:49

Phone the company and they might tell you of a neurologist in your are that has the devices they can issue.  I saw my headache nurse and it was prescribed that day and delivered the next day. 40 days in and only 1 headache & no injections. Working for me so good luck.

Adrian Abbott

Cluster Sufferer

Fri, 11/10/2019 - 10:40
Paddy G
Paddy G's picture
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Last seen: 2 days 8 hours ago
Joined: 15/10/2018 - 13:27

Hi friend I have a gamma core device I got on trial about 2 years ago. Unfortunately for me it did not even touch the pain or stop any attacks coming on as I suffer chronic CH. Anyway if I'm not breaking any medical laws then I would gladly post it to you. It may work it may not but anything is worth trying regarding CH.

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