I suffered from my childhood through to my early twenties with migraine. I am now 60 and an episodic cluster headache sufferer, having my first episode about 13 years ago. My fourth episode started mid December 2013.
When this episode started I was treated with Prednisolone as in previous episodes but this time it proved ineffective. Verapamil also proved ineffective. I had to stop taking the next treatment, Indometacin, due to an adverse reaction in the form of chronic indigestion. I have been taking Gabapentin since April.
I started with 200mg of Gabapentin daily that increased to 1200mg before finally stopping the cluster attacks. I have not had a cluster attack for some weeks now. However, all through the period I have had a constant dull pain down the left side of my head, the side I get the cluster attacks. It is not bad enough to warrant taking pain-killers but it is debilitating.
My main problem with Gabapentin is that I feel “spaced out” most of the time, particularly in the mornings, when it feels like I consumed inordinate amounts of alcohol the night before. Mid afternoon is a bad period too. I am now working to get off the Gabapentin by reducing the dosage by 100mg every 5 days. I am concerned as to how long this feeling will continue when I stop taking the Gabapentin as it has not changed at all despite reducing the dosage from 1200mg to 500mg daily.
I have not worked throughout the whole episode and find it difficult getting people to understand what I am going through and how I feel. My boss has been pressuring me to get back to work. Even my GP commented I had been off work longer than people having major surgery. I work on large value contracts and would not trust myself in my current state, I feel very debilitated.
Has anyone else had experience of Gabapentin and managed to get back to feeling normal.
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