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First episode of CH in 12 years

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#1 Wed, 28/04/2021 - 17:04
Kara_j-b
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Last seen: 10 months 2 weeks ago
Joined: 27/04/2021 - 18:55

First episode of CH in 12 years

I have suffered with CH since i was a teenager and i have been very fortunate to have not had an episode in the last 12 year until this week and its knocked me for six completely .

Hope everyone is well

Kara --

Thu, 29/04/2021 - 21:27
DavidH 7
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Last seen: 2 days 20 hours ago
Joined: 26/02/2014 - 15:13

I don't have anything properly wise to say but the idea of that happening (I imagine you'd presumed them gone) fills me with horror.  I hope you're okay and maybe something has changed regarding treatment in those years?

Fri, 30/04/2021 - 16:32
Kara_j-b
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Last seen: 10 months 2 weeks ago
Joined: 27/04/2021 - 18:55

I was not on preventatives as they never worked for me however I am willing to try them again and fortunately the gp I spoke to this week was so helpful and aware of CH (complete change to when I was first suffering)
Can't think of the reason why they have come back but it really was a complete shock which is why I rejoined OUCH as I was a part of this very friendly community back then and it was an invaluable support network

Kara

Sat, 22/05/2021 - 06:49 (Reply to #3)
Dorothy
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Last seen: 2 weeks 3 min ago
Joined: 19/02/2014 - 10:16

Hi Kara

So sorry to hear that. I hope your GP sorts you out with oxygen (and a demand valve if available in your area). If GP is CH aware I'm sure he's probably prescribed sumatriptan injections.

Best of luck!

Dorothy

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