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a few links to stuff happening on facebook on awareness day :)

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#1 Tue, 21/03/2017 - 14:17
zanycheff
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Last seen: 6 years 7 months ago
Joined: 26/02/2014 - 14:35

a few links to stuff happening on facebook on awareness day :)

http://themilkbar.podbean.com/e/jason-forrest-in-the-milk-bar-episode-403/

OUCH (UK) - Cluster Headaches
18 March at 15:22 · 

Fighting Shadows documentary film on cluster headache. Please share to raise awareness of this debilitating condition.

https://youtu.be/WuIzRTnT6c0

Fighting Shadows - Short Documentary

 

12 March at 11:59 · 

As part of this years Cluster Headache Awareness day, the European Headache Alliance are looking to lodge a petition to ensure a high standard of care for all CH sufferers across Europe

http://www.activism.com/…/an-open-letter-to-the-memb…/196374

 

An open letter to the members of the european parliament about ensuring in the whole europe high qua...
An open letter to the members of the European Parliament about ensuring in the whole Europe high quality care, research , equitable employment opportunities, and socio-economic support for Cluster Headache (CH) patients, Crea la tua petizione online, cambiamo questo mondo dal basso. Firma le petizio...

ACTIVISM.COM
 
 

more to follow

Tue, 21/03/2017 - 14:22
zanycheff
Offline
Last seen: 6 years 7 months ago
Joined: 26/02/2014 - 14:35

Organisation for the Understanding of Cluster Headaches.
1 hr · Leicester · 
 

I'm on at about 01:14:50 and Giorgio finishes at 01:32: 18 with a bit of John Lennon in the middle! I've not listened to it... hate listening to my own voice! Just to clarify I have SUNA, CPH & hemiplegic hemicrania continua as well as CH, so I have up to 200 TAC attacks a day!

 — feeling nervous.

 

www.bbc.co.uk

BBC.CO.UK
 
 

 

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