OUCH(UK) Organisation for the Understanding of Cluster Headache


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Cervical instability as possible cause

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#1 Sat, 17/12/2022 - 18:48
Last seen: 1 month 1 week ago
Joined: 07/12/2022 - 08:05

Cervical instability as possible cause

Hi everyone

I am a new member. In 2015 i was diagnosed with episodic cluster headaches, migraines, cervicogenic headaches and ironically, medication overuse headaches as well. I also was diagnosed with fibromyalgia. The cluster headaches started in August of 2008, so it took 7 years to get a diagnosis. I am a 60 year old woman who has had three accidents resulting in head injuries: I ski-ed into a tree on a school holiday and knocked out teeth and had stitches in my head, a year later I had a motorbike accident and went over the bonnet of a thoughtless mini, knocking out my two new teeth and breaking my jaw, and then in 2015 I fell backwards down the stairs and cut my head on the corner of the radiator which got me 15 staples and a new type of headache, the migraine.!

I have been becoming progressively more ill. This summer I had to stop work as I developed chronic fatigue to go with the rest. I wake with a headache every morning which on a good day dissipates as i start moving, i am in a cluster attack phase for the last 5 weeks with the occasional day-long migraine thrown in. Zolmitriptan spray works for me for both cluster headaches and migraines but according to the blah should only be used for 10 days out of 30. I have recently had an MRI of my head and am awaiting the results. I tried to get the GP to ask for the neck instead of the head, but he said to start with the head! When the results come through he will then refer me to a neurologist.

Yesterday online I came across the term cervical instability. This is something that is much researched, and treated,  in the States, but not in the UK as far as i can see. According to the research it can cause all kinds of headaches, fibromyalgia, chronic fatigue, difficulties with gait and balance, cognitive impairment and memory problems (all of which are boxes I can tick).

Do any other members feel that their headaches are the result of head and/or neck trauma? And if so, what have you found works for you? Have you found magical osteopaths or fabulous physiotherapists? I live in West Wales and there is a shortage of neurologists and there are no headache specialists, apparently. I have to think outside of the box and push for something different to happen. Pharmaceutical solutions all seem to come with a price to be paid. Last years price was ending up in A&E with a dicky gall bladder as the Naproxen I had been prescribed was taking its toll.

Any ideas out there? Or indeed  similar tales to tell?

Thank you if you managed to read to the end of this post!



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