OUCH(UK) Organisation for the Understanding of Cluster Headache


Advice Line

0800 6696 824


6 posts / 0 new
Last post
#1 Wed, 06/08/2014 - 20:13
Last seen: 2 months 3 weeks ago
Joined: 26/02/2014 - 14:55



I am a chronic cluster headache sufferer and I work part time.My employers have been good at accomodating my headaches as they are at set times. However, I am now getting extra random headaches and I am off work at the moment. It is uncertain if I am going to be able to return to work as I work with patients in an acute hospital and can't just go off when I feel a headche coming. I am trying to prepare incase I can't return and need sum advice on possible benefits that I may be eligible for.

Please could you help?

Wed, 06/08/2014 - 21:11
Colin Allen Vic...
Last seen: 3 days 7 hours ago
Joined: 21/03/2012 - 15:19

Sarah,ring Neurosupport on 0151 2982999 and ask for the benefits adviser.

Colin Allen

Vice Chairman

Wed, 06/08/2014 - 23:09
Last seen: 7 years 10 months ago
Joined: 26/02/2014 - 14:54

sarah I was like that my work got more resticted to what i could and could not do, then had to be taken home with bad attacks all the time, in the end i left, it was a long time before i found out about benefits as no one tells you. just as well you have joined ouch they gave me a lot of support on that issue.

Fri, 08/08/2014 - 15:47
Last seen: 6 years 3 months ago
Joined: 26/02/2014 - 14:34

Hi, I am happy to discuss your case if you have had no reply from Neurosupport. The benefits situation depends upon your own circumstances. You will need to have a Sick Note from your GP on a regular basis and could be entitled to Employment Support Allowance (ESA) if not fit for work or Job Seekers Allowance. There are other important aspects to claiming benefits and I can refer you to some very useful sites. Also, you are protected as an employee and even though your job may be disrupted at this time, your employer is obliged to make "Reasonable adjustments" in the workplace. Take advice before you start conversations with HR.  Please PM me for my contact telephone number.

Kind regards Celine


Sun, 24/08/2014 - 21:41
Angie Moore
Last seen: 1 year 1 month ago
Joined: 15/08/2014 - 21:21

Hi, does anyone get the higher mobility rate of DLA or whatever it is now.  I used to have it but it was taken off me because I can walk? Is that the same for everyone



Mon, 25/08/2014 - 11:35
Last seen: 6 days 7 hours ago
Joined: 21/03/2012 - 15:16

Hi Angie,

I have high rate in both components of what was DLA.  I'll be changed over to PIP in a couple of years time, so I'm told.  At the time I applied I could walk, BUT I could never be more than five minutes from where my  oxygen was and I needed privacy to deal with attacks.  DLA was based on your needs to be able to live a 'normal' life, not on whether you could actually walk or not.  My neighbour had MS and she had DLA; but she could walk okay but not far; another had arthritis and the same applied to her. Contact Neurosupport for more info on what PIP is, how to apply for it.


Login to add comments

Share This

© OUCH(uk) 2024 | email: info@ouchuk.org
Registered Charity No. 1091919 | Registered in England Company No. 04339368